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Pediatric diffuse high grade glioma

Posted by Corey Thomas @coreythomas, May 6 6:23pm

So my Glioma had samples taken after surgery. Most all types weren't found until one place came back with Pediatric diffuse high grade glioma (grade 4). This is normally found in children from 1-5 years old. I'm 45.

Anyone here with something similar?

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sjt10323 | @sjt10323 | 1 day ago

I did at age 61. Due to negative attitudes from staff, I did get a 2nd opinion after my first treatment. They too were concerned with the results. There was a slight change in the results when they tested them again. Perhaps you should get one too if you haven't already.

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Corey Thomas | @coreythomas | 18 hours ago
In reply to @sjt10323 "I did at age 61. Due to negative attitudes from staff, I did get a 2nd..." + (show)
@sjt10323

I did at age 61. Due to negative attitudes from staff, I did get a 2nd opinion after my first treatment. They too were concerned with the results. There was a slight change in the results when they tested them again. Perhaps you should get one too if you haven't already.

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They are sending the samples taken to Mayo for review. Hopefully everything looks OK. Not sure where we are on that.

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