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Ankle-Foot Orthoses (AFOs): Your experience?

Neuropathy | Last Active: 22 hours ago | Replies (16)

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@domiha

Hi, Ray.... After reading of Ed's experience with AFOs last year, I found a pair of polycarbon ones on Ebay. I also ordered some made of polystyrene on Amazon. The polystyrene ones are lighter. The two types feel a bit different when I wear them. The polycarbon ones have a slight 'spring' to them when I walk, whereas the polystyrene are just a flat surface. I do find that either pair helps my balance a bit, but I usually don't wear them around the house, but moreso when I'm going out for something. The ones I got from Amazon were only about $40 each.... and can be returned if you don't like them. So that would give you a chance to "give them a try." The polycarbon ones usually have to be purchased through an ortho supplier and they run around $700 to $1000 each, but I did find some being resold on Ebay, the right size, and they fit my feet well. I think I paid $100 each for those. I DO notice better balance when I'm wearing them. Not perfect.... but improved compared without. If I'm going to be doing a lot of walking, I usually take my cane, as well. Lately, I've noticed that my calf muscles seem weaker.... and my legs seem to tire out more easily. I'm not sure if that's progression of the neuropathy, or if it's from lack of use of the leg muscles. What works for one my not work for another, as you know.... but the ones on Amazon would at least give you a chance to try them and see if they make any difference without too much expense.... and they could be returned! Best wishes! Mike

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Replies to "Hi, Ray.... After reading of Ed's experience with AFOs last year, I found a pair of..."

" … I've noticed that my calf muscles seem weaker.... and my legs seem to tire out more easily … "

Hi, Mike - That's exactly the reason I started my inquiry about AFOs. I can't be sure if it's a sign of progression, or if lately I've just been asking more of my legs. My partner and I are still in the midst of our big move; consequently, I'm carrying more things, loading and unloading my Jeep a half dozen times a day, and more: all stuff that would be wearying my legs even if I didn't have PN. The next step: talk to my podiatrist (in two hours) and get his input. Even if he's not keen on AFOs, I'll still continue ask around. I'd love to try a pair, whether thay are a big help or not, just to know.

Take care, Mike. Stay well!
Ray (@ray666)