1. < Neuropathy

Prevent neuropathy from getting worse with chemo

Posted by essarrbee @essarrbee, May 12 12:25am

Already suffer from neuropathy. Starting chemo in a couple of weeks for stage 3c colon cancer. Anyone have any suggestions for preventing neuropathy from getting worse? Thanks in advance.

Interested in more discussions like this? Go to the Neuropathy Support Group.

Mentor
John, Volunteer Mentor | @johnbishop | May 12 7:58am

Hello @essarrbee, Welcome to Connect. I'm sure you are not alone with your neuropathy concerns. I only have numbness with my neuropathy but definitely don't want it to get worse from another treatment. While you wait for members with experience to respond, you might find this related discussion helpful:

-- Chemotherapy-induced neuropathy: What helps get rid of it?
https://connect.mayoclinic.org/discussion/chemotherapy-induced-neuropathy/
Have you discussed your concerns with your care team to see if they might also have some suggestions?

REPLY
1 reply
dlydailyhope | @dlydailyhope | May 12 9:41am

@essarrbee
My suggestion would be to work with a nutritionist/dietitian to review your diet and supplements and make recommendations due to having colon cancer/chemo treatments and how best to support your healing. They can suggest a diet/supplements that help with detoxification and nerve support/healing.

Praying for you to get good results. 🙏

REPLY
1 reply
essarrbee | @essarrbee | May 18 3:10pm
In reply to @johnbishop "Hello @essarrbee, Welcome to Connect. I'm sure you are not alone with your neuropathy concerns. I..." + (show)
@johnbishop

Hello @essarrbee, Welcome to Connect. I'm sure you are not alone with your neuropathy concerns. I only have numbness with my neuropathy but definitely don't want it to get worse from another treatment. While you wait for members with experience to respond, you might find this related discussion helpful:

-- Chemotherapy-induced neuropathy: What helps get rid of it?
https://connect.mayoclinic.org/discussion/chemotherapy-induced-neuropathy/
Have you discussed your concerns with your care team to see if they might also have some suggestions?

Jump to this post

Thanks for the linked discussion. I've spoken with my doctor and my worry is also on his list of concerns but he did not have any suggestions for prevention. I also spoke to a couple of chemo nurses and one recommended vitamin B6 which is supposed to help prevent additional damage to nerves.

REPLY
2 replies
essarrbee | @essarrbee | May 18 3:14pm
In reply to @dlydailyhope "@essarrbee My suggestion would be to work with a nutritionist/dietitian to review your diet and supplements..." + (show)
@dlydailyhope

@essarrbee
My suggestion would be to work with a nutritionist/dietitian to review your diet and supplements and make recommendations due to having colon cancer/chemo treatments and how best to support your healing. They can suggest a diet/supplements that help with detoxification and nerve support/healing.

Praying for you to get good results. 🙏

Jump to this post

Thank you for the recommendation. I'll bet my doc office will have a recommendation for nutritionist.

REPLY
jchet | @jchet | May 19 8:38pm
In reply to @essarrbee "Thanks for the linked discussion. I've spoken with my doctor and my worry is also on..." + (show)
@essarrbee

Thanks for the linked discussion. I've spoken with my doctor and my worry is also on his list of concerns but he did not have any suggestions for prevention. I also spoke to a couple of chemo nurses and one recommended vitamin B6 which is supposed to help prevent additional damage to nerves.

Jump to this post

From what I’ve read B6 is not good for neuropathy so only use a very low dose if at all.

REPLY
1 reply
murray1960 | @murray1960 | May 20 10:42am

I’ve bought compression socks for neuropathy and wear them at night and that seems to help.

REPLY
2 replies
essarrbee | @essarrbee | May 29 12:15am
In reply to @jchet "From what I’ve read B6 is not good for neuropathy so only use a very low..." + (show)
@jchet

From what I’ve read B6 is not good for neuropathy so only use a very low dose if at all.

Jump to this post

I'm going to talk with my endocrinologist and oncologist before adding that to my list of meds and supplements. Thank you for letting me know!

REPLY
essarrbee | @essarrbee | May 29 12:21am
In reply to @murray1960 "I’ve bought compression socks for neuropathy and wear them at night and that seems to help." + (show)
@murray1960

I’ve bought compression socks for neuropathy and wear them at night and that seems to help.

Jump to this post

I've tried them and find them helpful when I'm going to be on my feet walking a lot, but when I have a day where I have to sit a lot, they cause my neuropathy to be worse in my feet. I can't wait to get them off. I'm wondering if anyone else has this problem. I guess this is a lot of trial and error.

REPLY
jchet | @jchet | May 29 8:49am
In reply to @essarrbee "Thanks for the linked discussion. I've spoken with my doctor and my worry is also on..." + (show)
@essarrbee

Thanks for the linked discussion. I've spoken with my doctor and my worry is also on his list of concerns but he did not have any suggestions for prevention. I also spoke to a couple of chemo nurses and one recommended vitamin B6 which is supposed to help prevent additional damage to nerves.

Jump to this post

I agree with the above person who said B6 is not good for neuropathy.

REPLY
lgshaide | @lgshaide | May 29 3:27pm
In reply to @murray1960 "I’ve bought compression socks for neuropathy and wear them at night and that seems to help." + (show)
@murray1960

I’ve bought compression socks for neuropathy and wear them at night and that seems to help.

Jump to this post

That is interesting. I have lymphedema along with neuropathy and was told not to wear the socks at night. They have boots you can wear that help. Check with your doctor to see if it is okay to wear them at night. Best of luck.

REPLY
Please sign in or register to post a reply.