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When to accept permanent long covid?

Post-COVID Recovery & COVID-19 | Last Active: 15 hours ago | Replies (163)

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@dmphillips

Where are you located? There are long haul clinics throughout the USA.
I had my first visit last week; I have seen more health professionals than I care to mention as we winter elsewhere and that is where I developed LC - so also have a medical team here (gastroenterology, cardiology, pulmonology, dermatology, allergy, ENT). We have a LC clinic here (Boise) and also have a few clinics in Arizona where we winter. As there is no “test” for long covid, getting an appointment is often self-reporting. The physician (internist) at the clinic here is helpful, including his team. He said he’s willing to try a large variety of therapies. He’s even had patients that make their own LDN (crazy) as it has to be made in a compounding pharmacy and can be expensive.
I find the most difficult thing about getting medical help is feeling well enough to get to the appointment or test. LC is a barrier to getting help - feeling so ill and gathering enough energy to get out the door.

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Replies to "Where are you located? There are long haul clinics throughout the USA. I had my first..."

Reading this has me weeping. You are NOT crazy. Just because the primary care, cardiologist, neurologist etc don't know what to do for you, doesnt mean this isn't real. I have to believe there will be diagnostics and effective treatments coming. Sending prayers & hugs in the meantime.