← Return to GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

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@sjc123

I was diagnosed with GCA in Feb. 2025, started immediately on 50mg Prednisone. After two weeks I still had jaw and some tongue involvement, so increased to 60mg. Around week 5, I started ACTEMRA infusions once per month and started Prednisone taper to 40 two weeks, 30 two weeks, 20 two weeks. From 20mg, I am now reducing by 2.5mg for one month each. At this pace, I will need about another 7-8 months to get to 0 prednisone, which is the hope. Actemra infusions continue one each month.

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Replies to "I was diagnosed with GCA in Feb. 2025, started immediately on 50mg Prednisone. After two weeks..."

You give me hope. I have started the Actemra self injecting pen every other week. So far so good. Too early to stay the taper and I’m down to 4 mg a day now. But will begin to taper after I have a few injections on board. Thank you.