← Return to Managing Post-Exertional Malaise (PEM): What can help?

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@rinadbq

I HATE that crash/overwhelming, incapacitating, leaden exhaustion more than anything! It has reduced my life to ~1/4 of what I used to be. It took 4 years to figure out what physical/emotional/cognitive things I can and can't tolerate and how much of each in a day or week. Tracking my activities and outcomes was the first step to understanding my current norm, then applying limitations and fine tuning my limits. And after that, well-life just happens and there are events that can't be controlled and all that goes out the window. Sometimes only my nose is just above water nd I can't catch up with life. Emotional therapy has helped coping with the feelings of loss, isolation, being misunderstood, and trying to stay on this side of hopelessness and being overwhelmed. Best to you as you navigate this!

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Replies to "I HATE that crash/overwhelming, incapacitating, leaden exhaustion more than anything! It has reduced my life to..."

I, too have found help through therapy. I am going to start tracking what I can and can not tolerate. Thank you for the post.

Hi @rinadbq. Once again your perfect word of “hate” in the way our lives are so changed is more appreciated than words can say! Truly hope you the quickest healing possible with all you have helped and continue to do for so many🌈