Small Intestine Bacteria Overgrowth (SIBO)

Posted by jacque6977 @jacque6977, Feb 22, 2017

My wife, after years of suffering from debilitating nausea and fatigue, has finally been diagnosed with SIBO as confirmed by a hydrogen breath test. It is estimated the bacteria has had at least two years to grow and may be well established. She has started on Xifaxan, at $35 per pill, but it is estimated that elimination of the SIBO may take up to six months. Her day now starts with her waking up with nausea and when she has a cup of tea and toast in the morning she gets sick within fifteen minutes thereafter. Her sickness is accompanied by violent belching, and at times she regurgitates liquid vile. The only drug she has for nausea is Zofran which does nothing for her. Are there any other SIBO sufferers that are experiencing the same symptoms, and what are you taking to reduce the nausea?

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Would a few weeks on the Low FODMAP diet help ? I found a lot of relief just doing that since my doctor wouldn't order the test to DX SIBO. I don't know if it would totally eliminate the problem but maybe it would decrease the nausea. Be aware that doing anything thru diet is not a quick fix of a day or two. I started feeling some relief after a week.

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I just got the trio-Smart breath test. I used to have SIBO due to Methane overload. The last few years that has been negative. However, they added Hydrogen Sulfide and bam! I tested high. So nice to have an answer! Now am on Xifaxan 550 mg 3x/day with Pepto Bismol for the diarrhea. It is working. It takes a few days to start working but being on a gut diet will also help. One like low FODMAP or a very limited basics diet without spices, sugars, etc. keep in mind it will get worse as the bacteria dies off since like any living organism it will fight to stay alive. That can be unpleasant but after 2-3 days it should be better. You really do need to have the breath test to determine which bacteria is the culprit. I did mine at home and mailed it in. Check any large medical center for gastrointestinal docs who are well versed in motility/stomach issues. If you’re stuck with a referral system, call the insurance company patient services dept and demand a referral to a better gastrointestinal doc. Good luck!

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@mrsflutterby

I just got the trio-Smart breath test. I used to have SIBO due to Methane overload. The last few years that has been negative. However, they added Hydrogen Sulfide and bam! I tested high. So nice to have an answer! Now am on Xifaxan 550 mg 3x/day with Pepto Bismol for the diarrhea. It is working. It takes a few days to start working but being on a gut diet will also help. One like low FODMAP or a very limited basics diet without spices, sugars, etc. keep in mind it will get worse as the bacteria dies off since like any living organism it will fight to stay alive. That can be unpleasant but after 2-3 days it should be better. You really do need to have the breath test to determine which bacteria is the culprit. I did mine at home and mailed it in. Check any large medical center for gastrointestinal docs who are well versed in motility/stomach issues. If you’re stuck with a referral system, call the insurance company patient services dept and demand a referral to a better gastrointestinal doc. Good luck!

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The Xifaxan didn't work for me at all (and cost $1,900 too).

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I’m so sorry it didn’t help you. I’ll try it because at this point my issues have become a bit overwhelming with my stomach. I hope it knocks this darn bacterial overload out!

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i tried it years ago when it cost $35. it worked once. subsequent times it did not. recently tried it again (it cost $750) and it disappointed again. although it was mildly effective for about 3 months.
it is no longer worth the effort or the cost. but if you do try it, make sure you are getting the highest dosage.

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@saucy

Thanks! I've been posting about fructose intolerance for awhile. It was the cause of my acid reflux and even after surgery could not get off meds until I cut off all fruit. I can't even eat berries! For those of you having problems please give it a try, I felt better the next day and have never taking a acid reducer since!

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I am gluten, dairy, fructose intolerant for 50 years. Fructose is causing great problem. I can't even eat most of the foods recommended on the fructose free diet. I eat no fruits and only 3 veggies in tiny amts. Living mostly on meat/fish. What has helped you the most. Is their no enzyme that can be taken? Linda

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Does anyone have comments or experience with the gut microbiome- brain axis issue in regards to taking antibepileptic meds and having a TBI? I am working on my symptoms of has nausea constipation. I have done research. I am working on my gut microbiome with dietary changes and CAM including green tea lemon ginger tea peppermint tea taking tuneric curcumin. My neurologist lowered my AED to lamotrigine ER 100mg daily due to my GI issues. He said my issues were not related to the lamotrigine but my symptoms are improving. I do not blame him because every patient he has cannot always have their AED dose lowered and remain seizure free. Any input appreciated.

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@elliep

i tried it years ago when it cost $35. it worked once. subsequent times it did not. recently tried it again (it cost $750) and it disappointed again. although it was mildly effective for about 3 months.
it is no longer worth the effort or the cost. but if you do try it, make sure you are getting the highest dosage.

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I think I have SIBO also, although I haven’t been diagnosed. I’m pretty sure I do though. I can taste hydrogen peroxide in my mouth, and I have frequent belching, almost constant bloating, and I can barely eat. I’ve been reading about it online, and there are some articles on the National Institutes of Health webpage that say that oil of oregano can be as effective, and in some cases even more effective than an antibiotic. Maybe you could try that? I think I’m going to try it. I don’t know what else to do. Good luck!

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that sounds serious. you need professional help with this, i think.

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@blessedwildapplegirl

I think I have SIBO also, although I haven’t been diagnosed. I’m pretty sure I do though. I can taste hydrogen peroxide in my mouth, and I have frequent belching, almost constant bloating, and I can barely eat. I’ve been reading about it online, and there are some articles on the National Institutes of Health webpage that say that oil of oregano can be as effective, and in some cases even more effective than an antibiotic. Maybe you could try that? I think I’m going to try it. I don’t know what else to do. Good luck!

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Thank you! I saw that Amazon features a mixture of Oil of Oregano with Black Seed Oil which also is an antibiotic alternative!

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