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Experience with Zometa infusion?

Prostate Cancer | Last Active: Apr 4 5:03pm | Replies (12)
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@rwj613

I don't reply much to the posts but I've been reading them and often feel short-changed, I get my zometa infusion every three months and don't notice any changes I do have fatigue but never linked it to the zometa, I was told I had PC about four years ago was never offered radeation or surgery, was put on chemo for 5 doses then ADT.
I have stage 4 gleason 9 5+4 ,16 hot spots from shoulders to tail bone, I've seen 3 doctors for radeation but they tell me it won't help me . They don't know but have said at some point I'll get Plavcto, I'm in Utah and I really don't think they care sense I'm 78 and at .01 psa so I'm belly aching on line.
Thanks for all the good words and info on this board I really appreciate it.

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Replies to "I don't reply much to the posts but I've been reading them and often feel short-changed,..."
jeff Marchi | @jeffmarc | May 10 2:16pm

Some doctors with zap all of your metastasis two or three at a time. I know people that have had that done, but I’m not sure if it would be effective in your case. Dr. Mark Scholz in Marina del Rey, California believes in SBRT and feels it can resolve peoples problems. You can have a consultation with him, but if not him some center of excellence where they can take a look at what being done and see if they can do more. He was discussing his thoughts at the last PCRI conference At the end of March. You can find it on YouTube and skip to that spot where he starts talking.

Yes, at. 01 it’s hard to do something, The drugs you are taking are working? It would’ve helped to know what drugs you actually on. If you are on both ADT and an ARSI (Zytiga or a lutamide) Then you truly do have to move onto something else If your PSA starts rising.

It is true that even with an undetectable PSA you can have metastasis that are not producing PSA or can’t be detected. There was a study (Wiley) that found some people that are undetectable have metastasis growing.

If you want to target the metastasis, there is radium 223 also known as Xofigo, Which is specifically designed to target Metastasis in the bones.

Then there is Pluvicto and or Chemo.

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