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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 6 hours ago | Replies (6448)

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@cap5457

Hello Laura.
So very sorry for frustration. Other than those of us in this elite group of PN sufferers, it’s hard to explain the incredible frustration & pain we have. My experience is very similar as yours. To many doctors to count. My PCP & several podiatrists all pointed to other root causes. Finally found a very sharp & knowledgeable neurologist this past August.
She identified the cause. Idiopathic large fiber poly PN. FINALLY HAVE A REAL DIAGNOSIS.

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Replies to "Hello Laura. So very sorry for frustration. Other than those of us in this elite group..."

Thanks for sharing with me. I have more emotional pain than physical. I have lost weight so my PCP is doing all kinds of tests. I think I need to find a neurologist who will be more engaged with me than my current one. I did see my podiatrist yesterday but he did not have any other suggestion than finding a good neurologist. I try to keep exercising and refining my food intake. Cut out alot of sugary stuff. I am not diabetic but sugar can cause inflammation.

Hi cap5457 I am glad you were able to get a diagnosis. There is alot of anxiety with test taking and not being able to find out what is wrong. Some doctors also do not have good people-skills. I will be going for more tests this week.

Thanks for your warm welcome. It is very difficult to get hold of a neurologist who will engage more fully. I will say today seems to be a better day. I even did some upper body weight training as I want to gain some pounds. I am also focused on the foods I eat. Everything makes a difference.