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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 2 days ago | Replies (6475)

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@arcuri24

My name is Laura. I have autonomic neuropathy and today is not such a good day for me. I am frustrated by my doctors' approach to my plight or lack thereof. Hope you are getting good care and have folks you can lean on. Never in my life did I think I would have to deal with something like this. Let me know what you do to bring a smile to your face.

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Replies to "My name is Laura. I have autonomic neuropathy and today is not such a good day..."

Hello Laura.
So very sorry for frustration. Other than those of us in this elite group of PN sufferers, it’s hard to explain the incredible frustration & pain we have. My experience is very similar as yours. To many doctors to count. My PCP & several podiatrists all pointed to other root causes. Finally found a very sharp & knowledgeable neurologist this past August.
She identified the cause. Idiopathic large fiber poly PN. FINALLY HAVE A REAL DIAGNOSIS.

What do I do? I do the best I can really live on a farm. Spent a lot of time with my animals. Try to keep engaged. Try to appreciate every day that doesn’t hurt as much of the day before. Take a lot of medication.L i’m trying not to let myself get to ahead of myself