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After two years of tests and exploration rI finally received a diagnosis of PPOAS in March 2025 Speech is becoming more effortful and difficult for others to understand easily. This very frustrating and there is so little information about this condition.. I would love to connect with others and share strategies and feelings.

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Replies to "After two years of tests and exploration rI finally received a diagnosis of PPOAS in March..."

My wife has been diagnosed to have primary progressive aphasia.
She had a bad fall in November of 2019 & was hospitalized for two weeks. She had fractures to bones on either side of her head. Upon returning home, she suffered frequent bouts of nausea & dizziness, but I learned the Epley maneuver &, over time, her problems went away.
Her ability to speak articulately never declined for over two years; after seeing a neurologist, DJ was given the diagnosis.
Over the past two years or so her ability to speak fluently & to process the words she hears from me has declined immensely. She has s en a speech therapist weekly for a couple of years, but there is no evidence that it is helping.
A second neurologist determined that she had mild cognitive decline, but no tumor & no dementia.
She is 78 years old, physically fit & active, manages all her household chores, cooks, etc.
However, our communications are really limited & I have had to learn to be very patient.
She reads, but it is very slow & deliberate.
I would be interested in your condition, issues & any input you would care to offer.
Thank you.

I hope you can connect here with some people! I know there are benefits to a chat like this and also to a "face to face." I am hoping we will have the second option, soon-- in the meantime, have you found the support groups through the NAA, Vanderbilt, or Brooks Rehab? There are some posts with more information but let me know if you need help finding them.