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@arbie

After two years of tests and exploration rI finally received a diagnosis of PPOAS in March 2025 Speech is becoming more effortful and difficult for others to understand easily. This very frustrating and there is so little information about this condition.. I would love to connect with others and share strategies and feelings.

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Replies to "After two years of tests and exploration rI finally received a diagnosis of PPOAS in March..."

My wife has been diagnosed to have primary progressive aphasia.
She had a bad fall in November of 2019 & was hospitalized for two weeks. She had fractures to bones on either side of her head. Upon returning home, she suffered frequent bouts of nausea & dizziness, but I learned the Epley maneuver &, over time, her problems went away.
Her ability to speak articulately never declined for over two years; after seeing a neurologist, DJ was given the diagnosis.
Over the past two years or so her ability to speak fluently & to process the words she hears from me has declined immensely. She has s en a speech therapist weekly for a couple of years, but there is no evidence that it is helping.
A second neurologist determined that she had mild cognitive decline, but no tumor & no dementia.
She is 78 years old, physically fit & active, manages all her household chores, cooks, etc.
However, our communications are really limited & I have had to learn to be very patient.
She reads, but it is very slow & deliberate.
I would be interested in your condition, issues & any input you would care to offer.
Thank you.