Hi Phil,
Thanks for your comments and input. Yes indeed, treating and managing PC is a very individual journey,
As I was sharing with everybody previously, I’ve already been dealing with some very debilitating health issues before my onset of PC. Even if you take the PC out of my equation, just trying to manage my daily living experience is a huge challenge. However, I am certainly thankful and incredibly grateful that I am no longer spending the 20+ years I did when I was home bound and bedridden. I wasn’t on “TRT” then as my “T” levels were within the normal range so there wasn’t any need to manage it. However, over time and probably due to some residual effects of my debilitating health issues etc. My “T” went down much further than usual normal due to normal aging and reduction in “T” that almost every man starts to experience after reaching age 40.
Like any other medical treatment or protocol a patient uses to increase the quality of their overall health, wellbeing and general state of health, “TRT” is just a valuable tool for me like chemotherapy or some other type of treatment another patient may choose to amplify his current treatment protocol and or another tool to supplement his care towards recovery and remission, “TRT” and pain medication are about the only two remedies that I’ve utilized which have delivered any measurable management strategies with. When I was also diagnosed with CHIARI MALFORMATION which is a congenital disease, it created some very serious neurological challenges for me. Thankfully, I was able to have a combination of neck, head and brain surgery to help correct that specific health challenge. Although it would not or could not assist me with my CFS or FM etc. By itself, it was a very beneficial procedure which measurably improved the quality of my everyday life. I just seek solutions and treatments that can potentially assist my recovery and extend my quality of life every day. I’ve spent hundreds of thousands of dollars of my own money in the earlier years trying experimental treatments and therapies. The medical profession hardly knew anything about CHRONIC FATIGUE SYNDROME or FIBROMYALGIA in the late 80’s and early 90’s.
Although they know a lot more now about what the diseases are NOT, there is still very little known about how and why people get them and how to treat it more successfully.
CFS and FM are really very much individual journeys for the patients who have to manage these diseases and everything associated with them,
When I got diagnosed with PC, I was certainly not pleased about it. However, at least I knew what I was dealing with and the medical profession had a history of evolving treatments and disease management options available which provided me with a lot more confidence in my ability to treat, manage and obtain remission with PC. I pray that I will remain in remission for the rest of my life m. As you can imagine, I already have enough on my plate to deal with.
Best wishes to you and all of our fellow PC patients as we seek a healthier life and extend our period of remission.
Kindest regards always,
Phil