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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: 1 day ago | Replies (6475)Comment receiving replies
Well, I’ve said my story all over the place. With a lot of different groups here in these chat rooms 2 1/2 years ago I didn’t know what neuropathy was, now I must say sadly I am well-versed in all of its complications. I learned about medicines. I’ve never heard of therapies than some cases. and in most cases, don’t do a damn thing. Hopefully, I have help open up discussions on the psychological effects of neuropathy, which I truly believe have an impact a very large impact on the physical aspects of this disease. We are all on a path, though different in many ways, the same, and it is my hope that someday there will be more answers than questions. I think I’m gonna take a break for a while cause real realistically not many of these post lift my spirits all the best I’ll be back.
Replies to "Well, I’ve said my story all over the place. With a lot of different groups here..."
My husband has PAD, Parkinson's, arthritis, and diabetes so we are always looking for anything to help. He uses my Revitive for about 30 minutes 2 or 3 times a week. Recently, I tried frankencense oil and helichrysum oil in a roller bottle using coldpressed castor oil as the carrier oil. This has given him relief for the pain and burning on the bottom of his feet. The helichrysum oil also is helping his very dry forearm skin. I used the castor oil a week after we married to help with pain and healing when the bypass in his left leg collapsed and he had to have it "rotor-rooted" (my 'medical term') to save his foot. I recalled my granny putting castor oil on cheesecloth and placing it on my belly when I had a bellyache. Worked for me and it worked for him. Our faith is strong and we rejoice inevery little victory.
Hope some of this helps.
I agree with you. These posts should be less about the desperation of trying to get a diagnosis (what difference does it make what kind of neuropathy you have?) and more about how to cope with it? Personally, I have been announcing to my family that I do not have the psychological wherewithal to withstand this condition if it keeps progressing at its current rate. Nor do I want to be a burden or end up in a nursing home. From the looks on their faces, they either don't know what I'm saying or don't want to know what I'm saying.
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Ain't it the truth. Like you, I had never heard of neuropathy until about eight months ago. I had severe pain in my lower back and buttocks from a ski fall in 2016. I got the pain under decent control until 2021 when it came back with a vengeance, sort of out of the blue. We moved to Delaware in 2023. Had to get new docs for Pain Management and PCP. Had a pain pump implanted after an excellent trial. It did not provide any relief. In July of 2024 I had an EMG that showed neuropathy, aka nerve pain. It wasn't until about November of 2024 that the more insidious symptoms began to show up... pain and tingling in extremities. Now, even walking is problematic. I never felt "old" (I'm 77) until these symptoms showed up. Yes. the pain, tingling and whatever is happening at the moment occupies just about every waking moment of my day. We can only hope and pray(seriously, PRAY) that medicine will be able to find some answers to this plague called neuropathy.