Hi nannynoonar -
I am so sorry to hear you are struggling. We have all been there. It's not an easy ride for sure. I wish I had a good answer, but I don't think I do. I know that after I was seeing my pulmonologist in NY for 18 months, he asked me if I would consider talking with some new members in the support group. The crazy thing is I had never heard of the support group and could have definitely used it when I was first diagnosed! So I don't know if it makes sense to ask your pulmonologist, or call around to some of the hospitals in your area? Also, when I was first diagnosed and was searching around, I came across NTM Patient Care UK https://www.ntmpatientcare.uk. They run periodic zoom meetings with speakers, etc. I reached out to them because I didn't know where to turn and one of their board members reached out to me and she was a lifeline when I needed it. She was very kind. Her name is Shirley Haywood. Maybe she knows of some online support groups? I know I'm not offering much, but I wanted to share the little I had because I know how hard it is to cope. Wishing you better days ahead.