CRPS FLARES and no support from family

Posted by sisenberg @sisenberg, 2 days ago

I have been struggling with CRPS for over 12 years. Recently I was in a short remission but now full flare up again. It’s hard enough, trying everything in your toolbox to deal with the pain and suffering, but when you’re family, especially spouse that you live with alone has no understanding the emotional stress flares the pain and then you’re in a cycle that is hard to break. I’m reaching out for those review, who know exactly what I mean and to see if there are any other tools, vitamins, supplements, natural remedies that you can suggest to help me the flare with the added emotional stress

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dlydailyhope | @dlydailyhope | 1 day ago

@sisenberg
If you do not have a psychologist that specializes in helping patients with chronic pain, that would be a good support for you. You may also want to work with a dietitian/nutritionist to review diet/supplements to determine what may best help.

Finding support groups for CRPS would help you as well. Having a spouse that doesn’t understand your condition or show sympathy or empathy is difficult. When you have an invisible pain condition, it is hard for others to understand what someone dealing with chronic pain and suffering is like to deal with daily. If they experienced the pain, they would possibly be more empathetic.

You really need to care for yourself and get the help you need. Trying to get a partner to change is not worth your energy. You need to focus your energies on getting help from others to meet your care needs.

1. https://rsds.org/
2. https://crpswarriorsfoundation.org/
3. https://www.ninds.nih.gov/health-information/disorders/complex-regional-pain-syndrome
4. https://www.acibademhealthpoint.com/finding-crps-support-groups-in-the-usa/
5. https://fighttheflame.org/support-group
6. https://www.mayoclinic.org/diseases-conditions/crps-complex-regional-pain-syndrome/diagnosis-treatment/drc-20371156

sisenberg | @sisenberg | 22 hours ago

Thanks so much

caban | @caban | 5 hours ago

In reply to @dlydailyhope "@sisenberg If you do not have a psychologist that specializes in helping patients with chronic pain,..." + (show)

I feel for you. It’s hard coping with pain when no one can see the cause. I’m sure many think that it’s all imagination. Sympathy is more forthcoming if there is a physical problem that can be seen. Just remind yourself that it’s not their fault as otherwise their attitude makes you so angry which isn’t good for your pain. I feel for you. Take care