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Any experience with hyper -IgE?

Autoimmune Diseases | Last Active: 1 day ago | Replies (2)
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@dlydailyhope

@cdeldeo
Have you seen a rheumatologist, dermatologist and hematologist? What specialist doctor diagnosed you? You may want to also see an immunologist and get genetic testing if it can help properly diagnose and treat you.

Have you been prescribed prednisone/steroid to help calm your immune system down and reduce inflammation?

1. https://www.msdmanuals.com/professional/immunology-allergic-disorders/immunodeficiency-disorders/hyper-ige-syndrome
2. https://rarediseases.info.nih.gov/diseases/10956/hyper-ige-syndrome/
3. https://medlineplus.gov/genetics/condition/autosomal-dominant-hyper-ige-syndrome/

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Replies to "@cdeldeo Have you seen a rheumatologist, dermatologist and hematologist? What specialist doctor diagnosed you? You may..."
cdeldeo | @cdeldeo | 1 day ago

MGUS diagnosed by Mayo oncologist after bone marrow and pet scan. Dermatologist seems to focus on my squamous cell carcinoma and basal cell on nose. Immunologist referred me to oncologist. Oncologist said all MGUS cases are being managed by PCP who is as baffled as I am. Thank you for the references...will check them out. Appreciate.

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