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DiscussionAnyone on VYVGART Hytrulo, a new treatment for CIDP?
Autoimmune Diseases | Last Active: Sep 18 2:15pm | Replies (76)Comment receiving replies
Replies to "I have been on Vyvgart Hytrulo almost 6 months with mild improvement. I’ve had upper respiratory..."
I hope this works for you and I hope you are getting PT-essential in my experience for maintaining or improving. Drugs are not enough on their own.
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My husband suffers from CIDP and has been getting Immune globulin infusions for more than a year. We recently talked with his neuro PA about Vyvgart as his nurse is having more and more trouble accessing veins for his infusions. Are you on Medicare and a secondary insurance that covers your treatment? And did you have IVIG infusions prior to Vyvgart? He has infusions every three weeks for two days, which takes several hours each time, and getting the injections sounds easier. We are just a bit concerned about making a change as he does get some improvement of the neuropathy in his legs after infusions. Any thoughts on making the change or getting the same improvement from Vyvgart?