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Living with autonomic neuropathy

Neuropathy | Last Active: 43 minutes ago | Replies (8)

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@cheyne

Hi,
A good analogy. I think of it as when traffic lights stop working and the ensuing traffic chaos until service is resumed.
For me it is having a disfunctional digestive system from throat to the bowel and everything inbetween, which is permanent now. There is no treatment or cure for this. Random bouts of falling to the left which are now a stumble as the brain recognises the left foot hasn't moved and counters rapidly. I notice I start shuffling my feet when I get really bad, random lapses in remembering recent information, several times with the same info, usually the simplest of things to remember, like a time or a date. Poor hand eye coordination and cognetive skills, random muscle and joint pain random chest pain simulating a heart attack. It also interferes with my blood pressure when it wants, usually keeping it higher but can also drop it suddenly, because it can.
With ANS the brain still functions it is just the signals that have glitches, signals to and from the muscles and pain recepters get corrupted, randomly which can lead to muscular twitching not understanding what the signal is to do what.
As for the neuropathy part I have the typical diabetic neuropathy with feet and hands experiencing lack of sensation like I have socks and gloves on always.
So Autonomic polyneuropathy (ANS) is every nerve in the body is effected. The only counter I have found is to force the body to do as indicated by concentrating on the job at hand. The more I cancentrate the better the signal is interpreted. I'm unable to walk a straight line when moving slowly, my counter is to walk at pace which I concentrate on and ignore all around me, then I walk straight. This is what lead me to the realisation that concentrating on what I'm doing focuses the communication between muscles and brain over riding some of the glitches. This minimises the effects of ANS until I slow up to relax, then it's back to glitching.
To sum it up some things are majorly corrupted while others are lessor random features that can periodically get out if hand.
Cheers

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