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Testosterone recovery after ADT

Prostate Cancer | Last Active: 1 day ago | Replies (41)

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@philipsnowdon

Hello, although my situation isn’t exactly like yours I wanted to share some information about Testosterone and PC in general, I had started TRT, TESTOSTERONE REPLACEMENT THERAPY about 13 years prior to being diagnosed with PC. I’ve been severely debilitated from CFS, CHRONIC FATIGUE SYNDROME and FIBROMYALGIA along with CM, CHIARI MALFORMATION since the age of 37. Due to my disease states and other health factors, I already had a very low natural amount of Testosterone in my body. Hence, I started TRT at about age 56. It helped my overall health, happiness, quality of life and wellbeing enormously. Without my TRT, my Total Testosterone level measures between 20-90. Essentially, I am already “Medically Castrated” if not on TRT. When I got diagnosed with PC at age 68, my PSA had been within the ranges of 2 to 4 and in between for about 13 years. Within several months, my PSA went from 4 to 6 and a week after that, to a 7+. Obviously, I was headed in the wrong direction. However, I didn’t feel any different. I had also contracted PEYRONES DISEASE at around age 61-62 prior to being diagnosed with PC and was on a completely different treatment protocol for that. The main point here: I was already taking supplemental Testosterone so I could have some quality of life without having to be mostly home confined and bedridden.
Although Testosterone doesn’t directly cause PC. Once you have PC you must immediately discontinue the TRT because it will feed the cancer. Well, nobody wants to do that or certainly exacerbate their prostate cancer. I had to discontinue my TRT a month before my RALP in October of 2022 and felt horrible. I resumed my TRT 5 months later and within a week felt the same as I had prior to discontinuing my TRT in September of 2025! So, where is all of this going and what does it have to do with you? Regardless of whether you have or have ever had PC, maintaining an appropriate amount of “T” in your body is an absolute must for any man just to maintain overall good health, plus good Mental and Psychological wellbeing and overall attitude, Libido, Muscle and Bone mass etc.
The overwhelming amount of recent and current research strongly supports the assertion with enough testing and patient protocols supporting the evidence that maintaining a healthy level of “T” in your body is essential to help recovery from you PC treatments following surgery and from thereafter,
Given the fact that your Prostate has been removed and if you were fortunate enough from the surgery and results from your surgical labs to support the evidence and conclusion that the surgeon was able to remove 100% of your detectable cancer. Resuming “TRT” or starting some kind of “TRT” can be very helpful to the vast majority of PC Patients.
Personally speaking, without it, I have absolutely NO quality of life to live and feel like “near death” anyway. I’ve been there too many times prior to being diagnosed and treated for PC. I do and will choose quality of life over anything else every single time.
Most importantly, with the cancer removed and the so called, “PSA MANUFACTURING DEVICE” removed from my body, there is nothing left, (the cancer) for the Testosterone to feed!
My PSA right after surgery on 10/25/22 was < 0.014, (undetectable). It remained at that level for 25 consecutive months. It recently went up to 0.019, (still considered undetectable) a few months ago. Ready to get it checked again. There are NO GUARANTEES about anything related to PC.

FACT: One never beats PC or any other kind of cancer. You are either in remission or you are not! Making whatever decisions or determining whatever treatment options you decide will be most appropriate for you are very personal decisions and are based on your own personal life situation, beliefs, risk attitudes and other health factors. The only appropriate decisions and actions you determine to be appropriate are the ones that are BEST FOR YOU!
Listen to others, research, evaluate whatever information is appropriate to you and your case etc and then move forward with confidence feeling secure that you’ve done the best you can. In the end, that’s really the best that any of us can do! I hope that whatever I’ve been able to share brings some level of insight and helpfulness to you and your journey with PC.
Best wishes and kindest regards always,
Phil

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Replies to "Hello, although my situation isn’t exactly like yours I wanted to share some information about Testosterone..."

After being on ADT for seven years, I don’t think it’s nearly as bad as you say for everyone to have very low testosterone. I never had much fatigue, I don’t have to sleep every afternoon. Yeah, I get hot flashes, I have to go to a gym three times a week to keep my muscles up, Definitely have brain fog, Have to take bone strengthening agents.

All in all I’d rather be alive than have more testosterone.

I never had psychological problems with having very low testosterone, Not everyone does. Sure when I was first told I had prostate cancer I was definitely concerned, anxious, wondering, but I never got me depressed.. It wasn’t until 7 years later before I went on ADT, still never had emotional issue after.