← Return to Small Nerve Fiber Neuropathy (Idiopathic) EYE ISSUES

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@jenniferhunter Thank you for replying back. I had a Lumbar Laminectomy is July 2024. It was on February 17, 2025 that I had pressure come up in my head and I had blurry vision. It went away in less than 2 minutes. No deficits. But they couldn't find anything on scans. The eye thing that is going on comes and goes at will. The first time was March 13. I was sitting watching TV and I noticed what I will call a subtle feeling close to my eye. I took my BP and it was 180/90 I took a Clonidine and went to the ER and again they didn't find anything. I have had it happen more and am keeping track. I am keeping a journal of dates and whatever happens to me. One day It came to the left eye then it came to the right eye some time later. My cardiologist knows about it, my Ophthalmologist knows about it (He use to be a Neurologist). My regular doctor knows. I saw my Ophthalmologist and he checked my retinas and they were good. I have a referral in the works for a Neurosurgeon. I am hoping to hear something this week. When I saw the Neurologist that diagnosed me with SNF neuropathy idiopathic non length dependent I questioned him but he didn't have any answers. He said, "Don't go to a Neurosurgeon." I did not respond to that. I will go to whoever I think can help me. After the hospital visit in February I was told to see a Neurosurgeon. I specifically asked if my neck could have caused the pressure in my head and blurry vision and he said I had to get an MRI. I went back to see him and asked him again and he said well I don't know. When I saw him at that visit I was in a pt room. I heard him coming out of other patient rooms and he was sighing like he sounded frustrated and it didn't sound good to me. He told me that he could give me 3 injections in my neck in three different places. I asked him what he would use. He mentioned numbing medication and steroids. I was not happy about that and I made a comment. He got all flustered and said that Medicare requires him to start there. I had my back surgery and wasn't required to do anything else. I did not get any injections. I only think of that as a stop gap. The eye/blood pressure issue to me is more important right now and also I want to know more about this head pressure. I don't wish to have that again either. I also have other things that need done but they will stay on the back burner for now. I was supposed to go on a trip with two of my friends but I told them I couldn't. They understood why. I won't be making any trips unless it is to Houston if nothing is happening here with Doctors. I always read my reports and I think my neck needs some work. The problem is the Neurosurgeon. There seems to be a difference between a Doctor of Radiology who reads reports day in and day out and the actual Dr that you see. That in itself can be frustrating. If the Neurosurgeon says he can't help me I have a plan in place. I am most certainly not gonna sit and wait for another shoe to drop. No way. Having the head pressure and blurry vision which scared me and then to now have the feelings around my eyes it makes me nervous. Because I don't know when or if it will come back. Thank you so much for your response. I really appreciate it.

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Replies to "@jenniferhunter Thank you for replying back. I had a Lumbar Laminectomy is July 2024. It was..."

@rnlorena I'm glad you are advocating for yourself. You can't count on your doctor for this as is sounds like they are not paying attention to your cervical spine symptoms. Good for you!