1. < Neuroendocrine Tumors (NETs)

How rare is it???

Posted by pokeymama @pokeymama, Apr 28 6:49pm

I have stomach nets, sibo (small intestinal bacterial overgrowth), Autoimmune Atrophic gastritis and Stomach nets. I’m currently on the wait and watch protocol for the nets with monthly Octreotide treatments. Cannot take the antibiotics for the sibo (caused c-diff in the past), and have absolutely no advice from doctors about how to treat or live with the disease and symptoms of the AAG… My GI doc says he doesn’t know what more to do and I feel stuck and very sick of being sick, lol

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vinnie694 | @vinnie694 | 3 days ago
In reply to @coachv "+1 on Mr. Vinnie's response. For my personal education, do GIST NETs secrete like Pheos? I..." + (show)
@coachv

+1 on Mr. Vinnie's response. For my personal education, do GIST NETs secrete like Pheos? I got some datacenter cycles with Microsoft trying to model the secretion triggers. Pheochromocytomas mostly al secret, as far I am told, active Paragangliomas are very rare. How about any other NETs and hormone release. Do they, enough to show on a blood or 24 hrs urine test?

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Sorry i don’t have any answers ,I would definitely have to consult with my medical team for answers to your questions..

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