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← Return to Seeing Stoma Nurse in prep for radical cystectomy May 29
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Seeing Stoma Nurse in prep for radical cystectomy May 29
Bladder Cancer | Last Active: May 31 6:22pm | Replies (27)Comment receiving replies
My leg bag was great. It does require getting used to. I emptied it a few times but far fewer times than the regular stoma bag. It is challenging to have the stoma bag empty out whilst sitting or driving because my underwear, pants and belt go over the stoma bag. This blocks the urine to an extent. But now that I know I can manage it better. My leg was a bit red from the two straps. My stoma is rather itchy currently. When I showered yesterday I noticed more red skin and acne under the pouch seal. Worse than before. It may be nivolumab related or not. I am waiting on my RN to get back to me. I applied flonase and anti-fungal powder yesterday.
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@jaxfl I told my husband how you use a leg bag at work and he said that’s what he will do. Thank you for that! Also, it’s nice to see that you’re back to work. Yes , I was reading about nivolumab , that it prevents the cancer cells from cloaking themselves a your immune system can see and destroy them.
It seems the stoma can be free without any pouch around it for 30 minutes a day. Not sure if that may help a bit. Your RN will know just how to eliminate the irritation/rash and what to do to prevent it from happening again.
I have to say that you are a strong woman. Many would fall apart mentally….but you’re able to push on. I would be so proud of myself. I pray that God puts His healing hands on you..and cures you totally and completely 🙏. Rose xx