Hello again Carole,
I tried Gabapentin, Pregabalin, Lyrica, Clonazepam, among others. I tried medications for months even prior to actually being diagnosed and confirmed with the condition. Various doctors unfortunately kept using me as what looked like a lab animal. After everything, my PCP got me to stop absolutely all medications including one for cholesterol about 4 months ago. And by the way, it looks like the medical field might be going back and relooking at their previously made conclusion that statins do not cause neuropathy. I guess we shall see.
After many tests, the ER, and many doctors such as a cardiologist, gastroenterologist, neurologist at the second biggest hospital in my area where I work, I was finally referred to a specialist at a different hospital who diagnosed me and confirmed the diagnosis from the tests I had and after looking at my record history from the other hospital. Additionally, for still some unknown reason my blood pressure started going haywire for the first time ever around February of last year and I was put on a regulating medication 7 months into that. My doctor was slow. I'm still taking the blood pressure medicationat half the dose along with the steroids and the new medication I start after steroids.
I can only advise you to really look for a knowledgeable and caring neurologist and surround yourself with a good support group around you for the psychological effects so they can all help you navigate safely through your condition.
Take care and have a serene evening,
gus