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Congestive Heart Failure in young people

Heart & Blood Health | Last Active: Aug 29, 2023 | Replies (110)

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@maryd

I am so very sorry for the loss of your daughter. I have not heard specifically about kidney infection and cardiomyopathy but I know that viral infections anywhere in the body can affect the heart. I have had symptoms of heart failure on and off since I had a flu-like illness in 2006. Shortness of breath, and unable to build any kind of exercise tolerance. Fluid retention and chest pains as well. I have not been able to fly in an airplane without terrible shortness of breath and chest pressure. Consumption of any type or amount of alcohol will bring on the same symptoms. I have had numerous tests, all of which I am told are normal. Unfortunately, as advanced as the cardiac tests and imaging are, they do not show everything. I think I have a chronic virus in the heart that is responsible for the symptoms. The doctors will not do the more invasive tests like a cardiac catheterization because they don't feel the non-invasive tests warrant it. I am at a loss. I think your daughter may have had a strong virus or bacteria that attacked the heart. I feel that females with chest pains are not taken seriously enough and the tests, even though very sophisticated do not show many things. I hope we see changes soon. It seems incomprehensible in this day and age that we do not know more about cardiomyopathy.

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Replies to "I am so very sorry for the loss of your daughter. I have not heard specifically..."

Welcome back, @maryd! It's been a while, and although it seems you still aren't feeling too well, I'm so glad to see you return to Connect.

@maryd, have you considered making an appointment at the Heart Failure Clinic, at Mayo Clinic, https://www.mayoclinic.org/diseases-conditions/heart-failure/care-at-mayo-clinic/mac-20373154?

Hello! I had a heart work-up at Mayo Clinic, MN. in 2015. They reviewed many of the test results from the event in 2005 and forward. They repeated some of them, such as the stress echo with oxygen consumption and overnight oximetry. In addition they added an MRI of the heart. They would not do anything further because they felt my tests were normal. My symptoms are heart failure symptoms.....I strongly believe that. I was seen by the general cardiology dept. Is there a separate heart failure clinic? I recently read about cardiomyopathy with normal E.F. I'm wondering if they did not feel I had heart failure symptoms because my ejection fraction on echo is 50-55%.? is there anyone out there that has heart failure symptoms but is not being treated for such because blood tests and echo are not showing it?