@nikkiww7 Welcome to our Gynecological Cancers Support Group. Your pathology findings are the same as mine in 2019. I was stunned as I'm thinking you may be also. Still, you did indicate that the diagnosis explains symptoms you'd had for over 2 years.
When I had one UTI after another it was finally discovered that I had a "staghorn" shaped ureter kidney stone. I know how long it takes to diagnose these stones. For me, that was 30 years ago. My treatment was in-patient and outpatient lithotripsy. Was your kidney stone removed?
How fortunate that the testing you had for the kidney stone turned up endometrial cancer in the least aggressive kind. When I received my endometrial cancer diagnosis I was in my home area in the Upper Peninsula of Michigan. My gynecologist sent a referral to Mayo Clinic and I got in quickly at Mayo Clinic in Rochester, MN.
My experiences at Mayo Clinic have been this. Whenever there is a referral, follow-up, or testing, the system works efficiently and quickly. Which Mayo Clinic will you go to for your gyn oncology consult?
@naturegirl15, I am going to be going to Mayo in Rochester as well. I moved back to Iowa, and Mayo was one of the draws for this NE area of the state. The renal surgeon, also at Mayo, is postponing my "PCNL" (going in through the back to break up and retrieve that "golf ball") until after the gyn oncology work is done. Since I've had that big kidney stone for awhile, it is not as imperative and the pain is manageable. The stone removal will be another inpatient procedure with ~ 2-4 weeks of recovery time, so I'd say the summer is going to be spent driving back and forth to Mayo!
It is encouraging to hear how well you've done (for me, and for the family). I can't tell you how helpful that is. My sister-in-law and I are the only ones remaining of the 4 siblings and spouses, and the 3 young adults in the next generation (nieces and nephew) were deeply impacted. I'm being very matter of fact and minimizing this for their sake - and certainly not mentioning it to my 96-year-old mother. So all the info here is invaluable.
I saw a picture of the staghorn - the one that looks like coral - ouch! I hope you have formed no more, and are continuing to stay UTI free. Thank you so much for sharing your info and encouragement!