Anyone else have GI issues from cholesterol meds?

Posted by jacquejwal @jacquejwal, May 5 10:08am

I really need the cholesterol meds. My weight is too low to lower it by diet. The cholesterol meds cause reflux and IBS, the reflux meds cause more IBS.

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Profile picture for jacquejwal @jacquejwal

Those are both very interesting perspectives. I would love to ignore it but strokes run in my family.

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Oh, that is scary. My mom (before she died) and my sister both have had strokes. My blood pressure is OK, thank goodness. Have you ever tried any anti-inflammatory things? I have my sister take turmeric with black pepper and omega-3 fatty acids because they’re both supposed to reduce inflammation. [She has lupus) I should probably be taking them too! I don’t know if the turmeric would bother my stomach or not. After they removed my gallbladder, I can’t have a smidgen of a spice or I get really sick. But I think fighting inflammation is key. It’s so difficult to know what to do these days. But I wish you luck and good health.

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Profile picture for cheyne @cheyne

Hi,
I had 15 TIA's last year over 3 days and threw away the blood thinners after reacting to them. Still here and kicking, no more stroke problems, so far. I have high glucose levels, excessively high blood pressure and the cholesterol is elevated, none of which are controlled as I react to everything I've been prescribed. With just 2 options left for diabetes, one of which I started yesterday and am already having problems. I've been promised a stroke for many years but am still waiting!
You are right to be concerned, I was initially but as time has slipped by I have gotten past worrying about it, but I do take measures to help my situation, despite there being no more medications available to me. Frankly you'd have to be stupid not to heed the warnings by doing nothing.
Cheers

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Geez, @cheyne. You are getting run through the wringer. I found it helpful when one doc frame it up for me…there are 3 responses to meds:
* a net negative when the side effects are worse than what we are trying to improve - don’t want it!
* a net positive when what we are trying to improve outweighs the side effects - want it!
* a net neutral when side effects are not desireable but help what we are trying to improve - tough call!

Does this sound like your choices? How do your doctors approach it?

I am looking forward to hearing how this week goes for @jacquejwal .

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Profile picture for Janell, Volunteer Mentor @jlharsh

Geez, @cheyne. You are getting run through the wringer. I found it helpful when one doc frame it up for me…there are 3 responses to meds:
* a net negative when the side effects are worse than what we are trying to improve - don’t want it!
* a net positive when what we are trying to improve outweighs the side effects - want it!
* a net neutral when side effects are not desireable but help what we are trying to improve - tough call!

Does this sound like your choices? How do your doctors approach it?

I am looking forward to hearing how this week goes for @jacquejwal .

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Hi,
Four AM and right now it is more like gross negative for me. You think I would learn not to try new medications by now, but the urge for treatment out strips the the need to be comfortable. Trialing a new insulin, for me, currently, 36 hours of intense migraine, Tramadol hasn't put a dent in it. Woke this morning with the migraine continuing, shaking, joint pain, vertigo kicking off yet again and unusually feeling quite nauseated. Not something I usually get regardless of the medication taken. BP hit 186/117 and not sure if it is a reaction to the insulin or not, glucose level has dropped. Lord knows what will happen if I get to increase the dosage past this initial starter dose. Day three and ready to throw in the towel, but I have to resist that urge and give it a fair go. I resisted researching the known side effects in order not to influence the outcome, now after doing due diligence discover the known side effects are exactly the effects I have been getting with all previous medications trialed. I guess yet again I will be labelled psychotic!
Cheers

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Profile picture for blessedwildapplegirl @blessedwildapplegirl

I read several books about cholesterol and they were most eye-opening. 50% of people who died from heart disease have low cholesterol. Cholesterol is not the issue. Inflammation is the problem. Cholesterol does line your arteries to combat the inflammation, but you need to get the inflammation at its source. Statins are deadly. They put my husband on some about 15 years ago and he immediately started having all kinds of issues. That’s why I got the books and read about it and we had him taken off the statins and he never had any issue with his cholesterol, bothering him for the rest of his life. Have you tried changing the fats in your diet to good fats rather than bad? My husband ate a really healthy diet and we always used olive oil and coconut oil and we did not eat meat. My cholesterol is always elevated and I ignore it. It’s not terribly high, but after reading those books and I’m sorry I can’t remember the author’s names - one of them was called The Cholesterol Myth, it’s not the thing I worry about the most. I hope this is helpful. Modern medicine stinks in my opinion. It’s all about money and they make a fortune on those statins. You need to get to the bottom of your inflammation. That’s what causes most illness anyway. Good luck to you! P. S. Even stress can cause inflammation, so if the statins are making you sick, and you can’t eat properly, that’s probably making you sicker than the cholesterol!

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So true!
My cardiologist and PCP tried to put me on statins, I refused, being a nurse I knew. They did a calcium scan and my vessels are clear!
I am also on a low carb Mediterranean diet using only good olive pil and avocado oil.
Weight is dropping and my gut is healthy☺️

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Profile picture for cheyne @cheyne

Hi,
Four AM and right now it is more like gross negative for me. You think I would learn not to try new medications by now, but the urge for treatment out strips the the need to be comfortable. Trialing a new insulin, for me, currently, 36 hours of intense migraine, Tramadol hasn't put a dent in it. Woke this morning with the migraine continuing, shaking, joint pain, vertigo kicking off yet again and unusually feeling quite nauseated. Not something I usually get regardless of the medication taken. BP hit 186/117 and not sure if it is a reaction to the insulin or not, glucose level has dropped. Lord knows what will happen if I get to increase the dosage past this initial starter dose. Day three and ready to throw in the towel, but I have to resist that urge and give it a fair go. I resisted researching the known side effects in order not to influence the outcome, now after doing due diligence discover the known side effects are exactly the effects I have been getting with all previous medications trialed. I guess yet again I will be labelled psychotic!
Cheers

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@cheyne A “gross negative” sounds like the worst of the worst. Who told you to take this new insulin, and are you talking to them about the problems you are having? You really need someone walking through this with you. Do they know about the other medication you are taking along with it?

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Profile picture for Janell, Volunteer Mentor @jlharsh

@cheyne A “gross negative” sounds like the worst of the worst. Who told you to take this new insulin, and are you talking to them about the problems you are having? You really need someone walking through this with you. Do they know about the other medication you are taking along with it?

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Hi,
Yes it really is bad this time, likely the worst reaction yet, but while there is hope I have to keep trying everything.
I've been through all the diabetes meds with just ozempic left. I'm under specialists care now as nobody knows just what to do with me. I take very few other medications because of side effects which do not conflict with victoza. I suspect the carrier chemical in the insulins are the cause, yet again. They all appear to have the same carrier chemicals, the insulin itself differs.
Correction, this is the worst reaction I have had, just heaved up last evenings meal and meds! Never a dull day.
Cheers

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Profile picture for cantek @cantek

So true!
My cardiologist and PCP tried to put me on statins, I refused, being a nurse I knew. They did a calcium scan and my vessels are clear!
I am also on a low carb Mediterranean diet using only good olive pil and avocado oil.
Weight is dropping and my gut is healthy☺️

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Good for you! That’s great. 👍 I can tolerate avocados, but I haven’t tried olive oil in a long time. That’s a great idea.

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Muscle cramps in my legs. Very painful!! I am not taking anything orally now. My cholesterol is very high. Suggestions, please!!

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Profile picture for Janell, Volunteer Mentor @jlharsh

I am struggling with what to write, I think because I relate to a lot but can’t tell you “do 1….2…..3”. Initially similarities I see are that I, too need cholesterol meds, I have a history of them not working well as causing intolerable side effects, my weight dropped unintentionally, and I have been sleeping in a recliner for quite some time. I can tell you I ran in circles for a long time and I continued getting worse. Taking an integrative approach has made all the difference for me. Is your cholesterol controlled? How does all of this affect your daily life, your sleep?

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i am highly allergic to any form of soy and soy is in 92% of all medicine . OTC/Scripts. Also I have tried many brands over the years. and have reactions to them. I get uncontrollable pooing. I just took the injection Praluent and next day uncontrol gas, then the next day forward uncontrolled pooing, even in the middle of the night. I was exhausted from cleaning it up . Even if I drank, it would start the pooing. i had to sit most of the time... That is not quality of life. READ every ingredient. mag stearate, glycerin, sorbitol. etc are all derived soy. it is the monsanto that is causing the reaction. It is toxin. FDA contract signed states that if the us gov says or does anything to harm their sales, we owe them damages. Clean you diet of toxin. monsanto /round up are the same. hydrogen peroxide is our friend

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Profile picture for jacquejwal @jacquejwal

Those are both very interesting perspectives. I would love to ignore it but strokes run in my family.

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strokes run in my mom's side and aneurism on my dad's side. 2 yrs ago i had breast cancer, then i got lymphedema, then I started having trouble breathing and doing things fast. I had a TIA then my Cholesterol went bad. I did not have clogging 2 years ago. After breast surgery my top bp number became uncontrolled . They kept giving me med and it didn't help. the bottom number is low, not the top. I do not have a thyroid , so we tested the porcine med to see if it was the cause of the high bp. NO , But that takes 3 mo and 3mo getting back to normal readings. I argued with a warranty rep over the phone. I won, but my bp went to 201 /99 I took myself to the ER. After a bad EKG they sent me home, then my Dr sent me back.. They did a heart cath which showed I had 2 - 90% blockages. the widow maker and the thicken mid wall of the left ventricle. They want me on the shot .. I took it 2x's I'm done. I can't live being so many feet away from a toilet . All my readings went way down to my reading from 2015. total cholesterol is 165 I had started mostly eating ground turkey, and chicken... you have got to watch it being injected. i now eat pork loin. which has much less saturated fat. Stop the sat. fat. and i eliminated creme Brule. and some pastry. I have not lost weight. but numbers went way down... one dr said to keep your HDL high bec it gobbles up the LDL and sends it out in our urine. you want cold press EVO or avocado , stop eating the sat fat. dr thinks i took that shot, and i didn't so he thinks it has done wonders. That shot is very expensive, but i got a grant. I will not take it. I am trying to decide if I should take the IV ? I now have left vertebral artery stenosis 50-70% Ultra sound show 60 - 99% stenosis. i do not have symptoms. I have had double vision for 30 min and another day vertigo for 30 min. I went to the hospital and that was when the found my blockage. They never went far enough they said. they would test the brain, saying it was ok.. it wasn't and they hadn't check for 2 yrs.

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