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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 2 hours ago | Replies (6430)

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@andyjustin

Maybe we should re-title this chat room to neuropathy living with you was plainly you didn’t ask you to move in it just kind of crashed and now you have to deal with the consequences. Seems I’m always cleaning up after it. It’s a messy roommate when you think you’re all quiet And everything‘s right it comes to wake you up at night even though you put up a fight is a strange disease or is it a condition I’m not quite sure, but it was certainly an unwanted addition I struggle with a day and night take medicine to make me feel all right, but there are times and there are days when it feels like I’m living in an ugly haze the pain gets bad. I try to walk you through but it’s got more endurance so what am I to do? Try to have fun try to enjoy the life and get the darkness And move on with my life.

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Replies to "Maybe we should re-title this chat room to neuropathy living with you was plainly you didn’t..."

I like your suggestion, @andyjustin, that this room might be retitled "Peripheral Neuropathy Living With Us." 🙂

Peripheral neuropathy (PN) reminds me of what people say about vampires – with a twist. Vampires can only enter your home if they're invited in. However, once they’re inside, they never have to leave. In contrast, PN doesn’t wait for an invitation; it imposes itself on our lives. Yet, similar to vampires, once PN enters your body, it’s there to stay.

Through my experience, I’ve found that understanding and accepting the permanence of PN have been crucial in moving forward with my life.That hasn't stopped me from doing all that I can to lessen the symptoms of of PN or to stop its progression. I intend to fight my unwelcome guest, my PN, even if I there's nothing I can do to make it go away for good.

Cheers to us all!
Ray (@ray666)

Or maybe .... Living Well with Neuropathy 🙃 https://www.foundationforpn.org/living-well/