1. < Prostate Cancer

Osteoporosis and Osteopenia treatment and prostate cancer?

Posted by scottbeammeup @scottbeammeup, Mar 21 9:33am

I am not recovering from Orgovyx as quickly as expected and my post treatment DEXA scan shows osteopenia and osteoporosis that was not present pre-treatment. My doctor is recommending an infusion of Reclast (Zoledronic acid) that he says will last for a year.

I am very concerned, though, about the listed side effects: esophageal cancer, jaw necrosis and atypical fractures. I'm also leery because it seems every drug causes new problems that require yet another drug which causes further problems, etc.

I don't want to be in yet another situation where the cure turns out to be worse than the disease which is what seems to have happened with Orgovyx.

Has anyone taken this medication or known anyone who has? Has anyone had any of these major side effects? Were they treatable? Do you think this drug was worth it for you?

Thanks

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heavyphil | @heavyphil | 1 day ago
In reply to @scottbeammeup "Most of my levels are between -2.5 and -3.5. During my pre-ADT Dexa everything was in..." + (show)
@scottbeammeup

Most of my levels are between -2.5 and -3.5. During my pre-ADT Dexa everything was in the 0 to -1 range.

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WOW…ADT really did a job on your bones as well. Honestly, never thought 6 months would do all the nasty things it seems to have done to you!
Ironic that you bring up osteoporosis - my wife is going thru all that now. Her values are -2.1 to -2.5….and they’re screaming she has to get on a bone density drug ASAP.
Well, that is not happening until we boost the Vit D, magnesium and calcium and really rev up the weight bearing exercise routine; if we see no results after a full year we ‘might’ consider Tymlos or Forteo - but even those are not a long term solution.
We just ordered a weight vest from Amazon so she can walk on the treadmill at a regular pace (bad hip) and put a little more gravitational oomph onto her bones.
What are you doing, Scott, for your situation?
Phil

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brian5837 | @brian5837 | 23 hours ago
In reply to @scottbeammeup "Thanks. My readings were all around the -2.5 range, with a couple over -3 and none..." + (show)
@scottbeammeup

Thanks. My readings were all around the -2.5 range, with a couple over -3 and none higher than -1.5. The reason the doctor is suggesting a bone building medication is that my testosterone started to come back (was in the 300s) but now is dropping again (in the 100s) instead of increasing and he thinks I may have testicular failure. I'm noticing all the old ADT symptoms starting to come back even though I haven't taken Orgovyx in 5 months. They're still not as bad as before except the mental ones but I think that's just me feeling crushed by yet another setback.

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How long were you on Orgovyx?

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