@merrychristmas most emphasis is on the caregiver. They focus on the disease, and how to handle its effects on the family.
I think they (and other organizations) assume the “loved one” cannot take care of themselves so they bypass them.
I have dementia. I can still write, read, and understand the written word yet people like me are ignored…
It’s quite frustrating .

There is an organization whose focus is on the person with dementia only. It’s wonderful to be able to speak with others who are in the (same boat).
It’s Dementia Action Alliance. DAA.
Their site is:

http://WWW.DAANOW.ORG