I have Epithelioid
AngioSarcoma that started on my head. Took going to 6 different doctors and 15 months to get it diagnosed, Since it’s a rare cancer, I’m going to MD Anderson in Houston now and they confirmed the diagnosis. First seen there in December, 2023. I have had 3 different chemos, currently half way through the fourth one, which is Doxorubicin. (Which was started upon finding the spots on my lungs). I have also had PACLitaxel and Docetaxel. I did have 3 months of immunotherapy - Keytruda, and it did nothing to slow the progression, was growing. (It was after the PACLitaxel). I did feel better during that time, but treatment was not working. I’m told that’s our goal - to slow the progression since there is no cure. I have tumors in my soft tissue on my head, neck lymph nodes are cancerous, and spots on my lungs. I had a PET scan 3 weeks ago and the cancer spots seemed to be smaller. The current plan is to continue 3 more Doxorubicin treatments and see where I stand. All the chemos are brutal, but the immunotherapy didn’t help me. Anyone else have any knowledge of Epithelioid Angiosarcoma and would like to share what worked and didn’t work for you?