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Stage 4 PC Longevity: Anyone have prostate cancer more than 10 years?
There is a lot of great info on this forum. I am 54 and was just diagnosed in January with metastatic Stage 4 PC. (Hip, L4, Sacrum, and a small liver lesion). My PSA has gone from 359 in January to .24 last week and I feel great! I am curious to know how many guys on this forum have been treated for more than 10 years and what your quality of life is like. It is stories like this that will give me (and others) more hope. Peace to you all!!!
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Couldn't have said it better myself. Everyone is different, so never base your outcome on someone else...good or bad. Live your life and keep a positive attitude and don't let your diagnosis get you down. Like you, I'm going to die with prostate cancer, and not from prostate cancer.
What are you on that brought PSA down and how fast
I am 208 now on Abiraterone plus Prednisone 8 years since radiation Been on everything 80 now
My husband lived to almost 75. He died one week before his birthday.
He had not been able to receive Pluvicto early because of the hold up with the FDA approvals. He went without any treatment for 9 months. It's hard to say what might have been the outcome but he weakened greatly when he was mandated to try Chemo treatments before getting Medicare to pay for Pluvicto.
I believe that Pluvicto is the cutting edge of the treatment for the immune system, that cancer will be recognized as tied to our depleted immune system. I'm a retired RN nurse. Fred Hutchinson Cancer Center gave us 11 years and I would say 7 were very good years.Best wishes to you
I'm 73 and in my 11th year with, now stage 4, prostate cancer. After meeting all the preliminary requirements of treatments, etc. I became a Pluvicto clinical trial patient in 2021. It saved my life, literally. Quality of life was extremely good. In the spring of 2024, it was on the move, again. I'm now repeating the 6 treatments of Pluvicto (a complicated story). Again, it's kicking the cancer back and my quality of life remains very, very good.
I agree with jkwerner, Pluvicto is a, if not the cutting edge treatment. It attacks the cancer cells, no matter where they are. Sorry for your loss and delay in treatment.
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2 ReactionsI was diagnosed at age 68 August 2024, had the prostate removed in January 2025 my PSA is at 0.79, have one 5mm spot in the pelvic aera, now they want me to go on hormone therapy, and radiation, the hormone to last up to 3 years. On top of this they want me to go on statins, baby Aspern, has anyone went down this rabbit hole? I feel just fine right now but have been doing my research on all this stuff and it sounds as how quality of life is going to go down dramatically,
In response to 13roadrunnet.
I was in your place 10 years ago. The path you described is typical and usually necessary. The existing cancer needs to be addressed (surgery, radiation, hormone therapy, etc.) Then, you must battle it like your life depended on it, which obviously it does. For me, the litnay of drugs, targeted beam radiation on those troublesome tumors, chemo and an orchiectomy to stop the food source, testosterone. I'm now repeating Pluvicto, which I give an A+++. Based on my response to the first 6 Pluvicto treatments, I hope to go another 18 months, or so before ithe cancer gives me a real problem, again. I don't know about the statin's and asprin purpose for the cancer unless there's a heart condition.
My personal advice, do what you have to do. Stay on top of it and, more importantly, stay one step ahead if it. Your quality of life will be what you can make of it.
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3 ReactionsThank you for the addvice, I am not sure about the the statins and the asprin except the the radioligest said the the ADT will rase my cholestrol. Heart is good right now but am worried abought the druges runneing it. Right now I am in great shape I am ready for the fight no simptons of any kind.
Tahnks agan
To 13roadrunner:
Yes, I've learned testosterone decline can contribute to heart issues. Ironically, just this week, after 10 years of ADT, including a radical orchiectomy, I just saw a cardiologist who detected a rise in cholesterol and some calcium buildup in my coronary arteries and has prescribed rosuvastatin. So, it looks like your doctor is getting a jump on that issue. I have been taking 81mg aspirin for years. My upcoming heart scan next week will more clearly identify any problems.
Our worlds seem rather similar. As you noted, doing your research is time well spent. It results in better decisions, fewer surprises and keeps you on the reality track, good or not so good.
Yes, it sounds like are paths are similar, I am guessing no two are the same, as I had my prostate removed in January. One question that bothers me is after all these years the treatment has not changed from cut, burn and poison. I wish you all the strength you need to carry on.
Thank you for your reply