One thought that comes to mind is you have been very active which is great for your over all health. I know all of this is inconvenient and might come with embarrassment but my thought is don't let this disease take the rest of you. So important for us to stay physically active and if we don't all kinds of negative health issues can creep in at our age. I have bowl incontinence due to radiation side effects that Imodium can't overcome. I mountain bike in our state forest 3-5 times a week and carry TP in my Camel Back. I also have bladder urgency and carry a urinal in my vehicle if I can't make it to a bathroom. I know somewhat graphic but hell bent on living my fullest life rather than death by easy chair. I was a sports official and back on the field 4 months after RP. I was the only one that knew I was leaking into a pad. Of course I didn't like it, but loved my vocation more and the second chance to be a full participant in life. Life with PC is a gift. I encourage you keep living your fullest life even with a pad or incontinence underwear. Keep pushing the doc's for a solution. Best wishes.