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Any recommendations for specialist in incontinence post prostatectomy?
Prostate Cancer | Last Active: May 8 10:44pm | Replies (67)Comment receiving replies
One thought that comes to mind is you have been very active which is great for your over all health. I know all of this is inconvenient and might come with embarrassment but my thought is don't let this disease take the rest of you. So important for us to stay physically active and if we don't all kinds of negative health issues can creep in at our age. I have bowl incontinence due to radiation side effects that Imodium can't overcome. I mountain bike in our state forest 3-5 times a week and carry TP in my Camel Back. I also have bladder urgency and carry a urinal in my vehicle if I can't make it to a bathroom. I know somewhat graphic but hell bent on living my fullest life rather than death by easy chair. I was a sports official and back on the field 4 months after RP. I was the only one that knew I was leaking into a pad. Of course I didn't like it, but loved my vocation more and the second chance to be a full participant in life. Life with PC is a gift. I encourage you keep living your fullest life even with a pad or incontinence underwear. Keep pushing the doc's for a solution. Best wishes.
Replies to "One thought that comes to mind is you have been very active which is great for..."
Chip anoxics is something to check on. I am currently on the trail test. In helps urine and bowl inconstant both.
I have become very skeptical of what oncologists have to say. It is O.K. for Drs' to say "we just don't know" They should do this more often, My local support group has been WAY more accurate as to treatment results and their original diagnosis as well. As PC sufferers we not only have to deal with our horrible state but the loads of false info as well. "Side effects from Lupron are rare" which is total B.S. That is a quote from a local oncologist WTF! It is really difficult to live my "fullest life" feeling like a bad case of the flu with the worst head cold ever. All the time.We are still eons away from getting publicity out about PC and how common and life ruining it is. High school health class would be a good place to start, ya think?
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This is very very helpful chip
I love doing things.. As soon as I try things like gardening or exercising my mood immediately climbs, then five hours later I get slapped across the face.
I am optimistic, hopefully, RARP keeps the cancer at bay. The odds seem to be that I will get better with time and if not there are options. I had no idea this would be months and months though
I am really pushing anyone who might be able to help me to give me some tips, to make sure I am doing the right amount of exercise, kegels, bladder training and the like. I really want to do this right
thanks to everyone for replying and keep that mountain biking up.
I used to cycle a lot but on roads and flat trails, I can do big mileage but the ups and downs of mountain biking is over my head