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@jasharum

Can you tell me more about your sore scalp?
This was my first symptom. I had a tender scalp about 6 months before flare up of PMR and diagnosed with then. Docs seem to ignore my sore scalp. I asked my hair dresser t check my scalp and she didn't see anything. I had a Right temporal artery biopsy which was negative, however, this doesn't seem to be a very conclusive test. I have head pain off and on. Again, docs don't seem concerned.

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Replies to "Can you tell me more about your sore scalp? This was my first symptom. I had..."

Hi @jasharum, my scalp was tender to the touch. I didn't notice it until I touched it with my fingers. This happened both times I had GCA - initially, and with a relapse a year later.

Are you being treated by a Rheumatologist? Currently on Prednisone?

A doctor friend told me if I ever had visual disturbance to go to an Emergency Room immediately. This was after I had three incidents of brief vision loss in my right eye, which, fortunately, did not lead to permanent vision loss.

I just put a question to Perplexity.ai
Here is the answer:

No, a negative temporal artery biopsy does not always rule out giant cell arteritis (GCA). Key reasons include:
False negatives occur in up to 7%–44% of cases due to factors like skip lesions (segmented artery inflammation) and corticosteroid use before biopsy.
Insufficient biopsy length (< 15–20 mm) may miss affected areas.
Bilateral biopsies increase diagnostic yield by 5%–12% when one side is negative.
Clinical judgment remains critical, as GCA diagnosis relies on symptoms (e.g., headache, vision loss), elevated inflammatory markers, and imaging (e.g., ultrasound). Treatment should continue if suspicion persists despite a negative biopsy.

My pains with GCA were always intermittent - they would come and go. My pain with PMR was constant. It lessened a little at night, and was worse in the morning.
How is your energy level? Are you anemic? Both PMR and GCA can result in anemia from chronic inflammation.
I hope you can get an answer about your symptoms and appropriate treatment.