Wow - you hit the nail right on the head. "Instead of receiving the best of both worlds, many are forced to choose sides or navigate these separate approaches on their own". Boy, does that resonate. I have mainly relied on western medicine. There is not much else to try. Can't have deep brain stim or VNS since screwed up prior surgery rendered it unsafe to surgically implant anything. Left with participating in 2 new trials for new epilepsy meds. My neurologist on the GAD65 autoimmune side has nothing much else to offer. Everything from steroids, Cellcept, Rituximab, IVIG infusions, Actemra injections has failed, often with unacceptable side effects. No one (including Mayo) understands how or if the two diseases are unrelated, or it's a rare case of GAD65 autoimmune epilepsy. In any case, refractory temporal lobe epilepsy continues on its merry way and cognitive decline and brain fog are ever-present. Hence the turn to eastern medicine, which is little understood and all expensive gambles. I've tried Reiki, chiro, supplements, creatine, accupuncture, brain mapping, passive and active neurofeedback -- all to no avail. Still thinking about peptides, Chinese medicine, more investigation into thyroid and gut issues, non-inflammatory diet. IT'S EXHAUSTING and at what point do I stop seeking, and accept this is never going to change? And yes, I am trying to do this on my own. I cannot find an integrative doctor who understands this or thinks he or she can help and be a gatekeeper. Two very well-known integrative experts have turned me down due to complexity and uncertainty of my brain issues. Thank you so much for your post, and allowing me to share.
My pleasure @cathy5161
Navigating integrative or functional medicine in the Western world on our own requires caution, based on my experience. While there are qualified practitioners, unfortunately many charlatans exist. Both my mother and I once fell for questionable integrative doctors who charged more than our conventional physicians. Indeed, the protocol prescribed by this integrative neurologist I have been to in the past was exhausting, the same as your experience.
After these experiences, when an integrative doctor charges more than my neurologist, it immediately raises a red flag, prompting me to cancel. Fortunately, the hospital he in São Paulo (Brazil) where my current doctor practices is beginning to integrate conventional and complementary approaches, particularly for cancer patients. My father, for instance, receives Reiki sessions during his cancer treatment at this hospital. Though not curative, these sessions help him relax and improve his well-being.
Your post reminded me of some wise advice given me by my previous neurologist: "Let's try one thing at a time, otherwise we won't know what's working and what isn't."
Based on your last post, I feel you have had many experiences with functional medicine. Do you have any suggestions for identifying legitimate integrative medicine doctors and avoiding those who might be unqualified or exploitative?
Chris (@santosha)