← Return to UCTD -does gluten and dairy free help? Post knee surgery problems

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@jw9

@mojo55
I hope that you get lots of input from here about dietary changes and healing with MCTD. This is one of my 4 autoimmune diagnoses in the past 30 years. I think it's one I can remember since I was a girl; always spraining my ankles, knees buckling, shoulder dislocated, etc. I was taking yoga classes when I was 17 and I was a star! Who knew I was injuring myself from early on.

I wanted to tell you I hope you get replies here to help you prepare for the next appointment. Others may laugh but I became disabled when I was 31 and have let food be my one indulgence! Before gluten-free products were available I went gluten-free for 10 years to help IBS. Then I visited my elderly parents cross-country and arrived at midnight. They didn't have any food in the house except peanut butter sandwiches! So that's what I ate with no bad effects. That was the end of any special diet. I eat well, limit sugar, drink 3 cups of black tea/daily. Nutrition is important but I have never found any changes in my autoimmune symptoms.

I know most people will disagree. That's why I'm looking forward to seeing replies to your question. Also, I have been taking plaquenil for the past 4 years without a reaction. It seems so specialized; I tried methotrexate and it caused me to have the worst depression I've ever had. Meanwhile, I hear you; who wants to be a guinea pig. Wishing you good luck with putting your ideas together before that appointment.

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Replies to "@mojo55 I hope that you get lots of input from here about dietary changes and healing..."

Thank you @jw9. I’m thankful to find this online group! First it takes years to find a doctor, then more time for the diagnosis and all the while you just want some people to chat with who understand because they’re navigating similar things.