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How far do you push your doctors?

Lung Cancer | Last Active: May 15 7:22pm | Replies (6)

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@jessicamc

I went through watch and wait on a small spot for a year. Was ok with it. Had a biopsy at Mayo FL. and then surgery to remove a small area of lung. The spot was 11 mm and was a typical neuroendocrine carcinoid. No malignant tissue around it. No other treatment required. Went back for a follow up scan a year later and the report cited a new suspicious area. I waited for a call from the Dr because I had been going there once a year for 12 yrs due to other lung issues. After two weeks no one had contacted me.
I called and discovered the Dr I had been seeing is no longer there and the results were setting in limbo. The appt desk was very apologetic, arranged for me to see a different Dr within 4 days. I have some more tests/scans to schedule. Bottom line, be your own advocate and be willing to ask for the whys and reasoning behind drs decisions on follow up.

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Replies to "I went through watch and wait on a small spot for a year. Was ok with..."

I just had 1/2 lobe on left side a week ago all margins were good but I am going to really advocate for doing at least one round of chemo or oral chemo to make sure it is all gone. I do NOT want to go thru this again.. The pain is excrutiating ... Good luck with your jouney.