My pain from PMR goes into my calves, all the way up the back of my legs, up to my waist and then into my arms, and across my back and shoulders. It can be so painful that I can't bend down to pick up anything off the floor. When I was first diagnosed with PMR, it was after I woke up and was in so much pain, I couldn't get out of bed, nor walk unassisted and my husband had to dress me so we could go to emergency. It's been 3 months now and (thank God) I haven't had a fare up in weeks. I'm slowly trying to decrease my daily dosage with the help of my doctor. I want to be optimistic but I know this will take time and that I may have to deal with it for years to come. But never give up!