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incontinence following prostratectomy

Prostate Cancer | Last Active: 1 hour ago | Replies (38)
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@edinmaryland

thanks dm
I have a few questions what is Nerve sparing partial RP? I am just curious
I am going to a PT that specializes in male post prostratectomy incontinence and I really like her. I did not know to go to a pt prior to my surgery (wish I had now)
I am in the Maryland -DC area
is the TENS unit you use a stimulator/pelvic floor handheld trainer?? My pt did not want me to use any of the trainers. She has run into guys that have had problems including set backs with them
However, she and I are working on getting a hand held biofeedback device ( it only does biofeedback no training programs) to make sure my form is good. The one I am looking at is $750.00 However if it will help me I will get it

I love the list you gave me. I knew about coffee, citrus fruit and alcohol. I have stopped all of these. I did not know apples could be a problem nor did I know about sourdough bread. I may have to change these /
I also did not know I could buy acid free coffee. I really miss coffee so I will check this out right away.
I really appreciate your help/ I have been trying to really take it easy but still go for a walk or two every day but I leak almost all the way.,

How long did it take for you to be almost continent following the surgery?
Thanks very, very much

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Replies to "thanks dm I have a few questions what is Nerve sparing partial RP? I am just..."
dmccarthy104 | @dmccarthy104 | 23 hours ago

First off not a Dr, just an old guy who had surgery for prostate cancer.

When a person has a radical proctectomy, there are options. One is non nerve sparing where all of the nerves on the prostate are removed. The second opinion that I received from the Dr at Dana Farber was that he told me he'd only do non nerve sparing.

If they remove the all the nerves you will never have a natural erection again. Then its Trimix or an implant, is my understanding.

I chose the Beth Israel Hospital as they told me they could do nerve sparing but likely only partial. And that's what I have one set of nerves is intact and the other side only half the nerve bundle was saved. I do get nocturnal erections and can get a partial erection but not firm enough for intercourse. Then I rely on Trimix, which for me works well.

The TENS unit pads attach by my ankle. Your PT should be able to show you proper placement on your ankle. I purchased one at Amazon, the Auvon Rechargeable for $29.00, and it works well.

I also use bio-feedback but the unit is in my PT's office.

There's a decent book that helped me a bit -- https://www.ebay.com/p/246975819 "Life After Prostatectomy" .

And I was mostly continent after about 15 months.

Kegels 3-4 times a day, yes there's an app for that.

Good luck and please happy to answer any questions that may help you.

Again just my experience, everyone has different experiences.

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