Low thyroid and sodium

I am also on Synthroid (levothyroxine) and started on the medication in February 2024. The TSH was 15.5. In May it dropped to 1.4 and then to the .67 in a month and the dizzy spells were becoming unrelenting. My blood tests were done and I had a sodium level of 131. It seems today doctors have started treating patients through portal systems. It is the most frustrating and unworkable healthcare creation ever developed since the wait time for a response is 2 to 3 days. Then I finally hear from them and I get the brush off, or, "you're just getting used to the medication, or you're doing something wrong", etc. I was so debilitated I went to a clinic on the advice of my pharmacist. There was an NP in charge and he read my test results, and said you really need sodium. He gave me a Meyers Cocktail infusion and it was very helpful and now, I drink a V8 in the morning and the dizzy spells stopped over the last 3 days. I know it sounds so simple, but adding the high sodium drink seems has given me a few days where I am slowly letting go of the fear of the sudden onset of dizzy spells that happen unexpectedly. I know you're sodium level is higher than mine, but you never know.

I was told to cut fluid down and down, but still my sodium stayed at 134. The lowest was when I was in a car accident.( no else involved) sodium was 121.( can go into coma below 120) I am 72 and have to add salt to everything and I also take salt supplements on top of it. The highest ever is 135.
I have learned when I notice I am going to the restroom frequently to increase salt real fast. Drinking high sodium drinks help. The worst was taking sodium Chloride tablets. It changed my taste buds and some with smell ( no COVID) but I keep them handy for emergency.
As long as it stable to your “ normal” you can work from there.
Any sickness like flu,etc make sure you don’t become dehydrated. If you think you are, watch how you feel. You may need medical attention
Good luck with SIADH.( syndrome of inappropriate antidiuretic hormone secretion)

If you need salt, there is something going on with your adrenal glands.

If you have a condition with your antidiuretic hormone, you have a pituitary problem. (This can be far reaching and affect your other hormones produced by the pituitary too. My husband had a benign pituitary tumor that was pressing on the optic nerve. He was told that he might go blind if nothing was done about it. Have you ever taken an MRI to look at the pituitary? If not, I think it would be a good idea.

No, nothing there. Even went to a nephrologist. Given salt tablets, cut fluids and enjoy. Didn’t work.

One thing g I have changed in my life, just one small change. I no longer have my countertop ice machine and I no longer buy ice. Since doing this, my sodium is the highest at 135 -138 ( highest) I don’t know why but making my own ice has really helped. I don’t worry eating out and enjoy ice, a little doesn’t hurt. I also know what my salt intake is and take precautions if necessary. Always have salt tablets with me just in case.( and use freely if necessary) I am the only one who knows my body and I have learned to listen to it.( same goes for gluten & soy intolerance) You are your own doctor sometimes. I do have my sodium check every time I have blood work done for thyroid check. My way of learning.

The pituitary gland is another source of making adrenal hormone. Your nephrologist might not pick this up. You know the little ditty "your knee bone is connected to the ankle bone . . . " but what about the other stuff in between that needs looking at. Don't need to be crass, but have been in that situation. That is why everyone's comments are truly appreciated. We are all working together trying to solve our health problems. I thank all of you.