It sounds like you’ve dealt with a lot. I’m glad you have great medical support.
Unfortunately autoimmunity & Prolia can be a very bad mix. It’s on Amgen to be sure the adverse effects with autoimmunity are in the large print & not in the microscopic print.
An autoimmune disease patient does not want an escalation in their condition(s) as I’ve had & continue to have. Our battle is remission, not escalation.
It could even prove deadly for reasons I originally posted to this thread re: Prolia & Autoimmunity.
It’s a black box drug with many class action law suits for a reason.
I have a terrific, well known Rheumatologist who was unaware of immunogenicity with Prolia.
Rheumatologists & Immunologists should absolutely be better informed by Amgen about this complication so they can discuss with their patients.
Desperate for help I called Amgen. The first thing they did was send my case “to legal”. I didn’t understand what this meant. Now I know. I’m one of many.
Agreed, doctors need to be up-to-date on relevant developments. That is why it matters to see a Specialist who also has the appropriate subspecialty in the issue. It is surprising to see the difference in treatment decisions.
As far as Amgen passing you to their legal department, I would expect any pharmaceutical company to do the same thing. Their legal departments no doubt instruct them to do that.