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Prolia dangers for those with autoimmune disease
Bones, Joints & Muscles | Last Active: 15 hours ago | Replies (25)Comment receiving replies
You make an important point "risk vs. benefit".
9 years ago, I decided to go off osteoporosis medications. I had been on Fosamax and Evista. My PCP said I was in good health and could live a long time, so she was worried about me breaking something and being permanently handicapped. She told me to see an endocrinologist. He prescribed Prolia. Last year the local place doing my bone scan suggested I switch to Fosamax after 7 years of Prolia. My PCP said he was not qualified to make such a decision, and I should see an endocrinologist. I went to Mayo, and they told me to stay on Prolia for another five years because it has anti-bone tumor properties...and I have lung cancer. That was an important consideration for me! The lesson - talk to knowledgeable specialists who can consider your total health profile
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It sounds like you’ve dealt with a lot. I’m glad you have great medical support.
Unfortunately autoimmunity & Prolia can be a very bad mix. It’s on Amgen to be sure the adverse effects with autoimmunity are in the large print & not in the microscopic print.
An autoimmune disease patient does not want an escalation in their condition(s) as I’ve had & continue to have. Our battle is remission, not escalation.
It could even prove deadly for reasons I originally posted to this thread re: Prolia & Autoimmunity.
It’s a black box drug with many class action law suits for a reason.
I have a terrific, well known Rheumatologist who was unaware of immunogenicity with Prolia.
Rheumatologists & Immunologists should absolutely be better informed by Amgen about this complication so they can discuss with their patients.
Desperate for help I called Amgen. The first thing they did was send my case “to legal”. I didn’t understand what this meant. Now I know. I’m one of many.