← Return to Any experience with ganglion cyst misdiagnosed as acoustic neuroma?

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@brchristian

Sorry Colleen. I didn't actually answer your question. No, they did not remove it. They couldn't do that without risk to the facial nerve. But if its a ganglion cyst, the concern seems to be lower that it is a long-term threat. So the doctors are just proposing an annual MRI to monitor it.

By the way, our daughter will be back in the US in August. We might like to get a second opinion from Mayo on how to manage the situation going forward. How should we proceed? Thanks!

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Replies to "Sorry Colleen. I didn't actually answer your question. No, they did not remove it. They couldn't..."

@brchristian, to submit a request for a second opinion, start here: http://mayocl.in/1mtmR63

You may want to start the process before her return in August.

I'm glad that you and daughter are following both the Brain Tumor group and the Hearing Loss group here: https://connect.mayoclinic.org/group/hearing-loss/

There's a lot of support and knowledge from members in both groups.