Can anyone share their experience with ProACT (an AUS)?

I had a radical prostatectomy Dec of 2022, in June of 2024 I had the proact installed. I went from using 12+ depends per day and 3 nighttime depends per night to 1 nighttime and using about 6-7 male urine guards per day.
I would say this device is a life changer and is very helpful.
It does suck that I only get an adjustment once a month and sometimes it’s only .5 cc volume. But it has helped. I saw some other comments about how it affects sexual performance. I don’t know since prostate surgery I have not ben able to have an erection. I hope this helps someone make that decision to have it done.

Year of 100% incontinence. Three doctors want me to do AUS. They do not recommend ProAct as AUS is the "gold standard". Of course they only do AUS. My one doc who I believe caused the incontinence wants to do ProAct. (1) He's only been doing it 5 months. (2) don't know that I trust him anymore.
Anyone have a ProAct done and, what was the outcome.
I'm in NY and, having a hard time finding anyone.

There was one person that reported Using ProACT in this forum. Hopefully, he shows up and talks about it. He said he was using six pads a day and proact resolved the problem almost completely. AUS works almost completely too, some leakage from both.

I had pro act installed in June of 24. I just had my final adjustment two weeks ago. I’m very satisfied with it. I still leak but am able to control leakage with a male urinary guard instead of full depends. I’m in Colorado I used dr Flynn @uc health. I fully recommend him he’s Been using this for a while few years. I’m 55 had prostatectomy in Dec of 22.

Hello! Our situation is uncannily very similar to yours. My husband also had a prostatectomy in October, 2022 at age 69. His incontenance post surgery went away within 8 weeks. But, he still had a residual bit of cancer detected three months later. He had seven weeks of radiation April through June of 2023, along with six months of hormones (ending October, 2023). He has been cancer free after the radiation. But his incontenannce has gotten progressively worse. He went through 8 weeks of pelvic floor PT at UTSW and another 8 weeks at a local hospital. He saw no improvement. He enjoys cycling, martial arts, and running, so he does not want the artificial sphincter. He was tested at Mayo and they said he showed minimal damage from the radiation and the doctor thought ProAct would help him, even though many doctors will not do the procedure on someone who had radiation. He will have his surgery Monday. My understanding is that it will take several months of followup visits and adjustments. I will let you know how that goes! I, personally, am very encouraged. A side note - he traveled to Dallas for his 8 physical therapy visits, incurring flight and hotel costs each time and we will travel to Mayo about 5 times, incurring flight and hotel costs. That is how miserable he is and how willing he is to try this. If it reduces his incontinance by just 50%, it would be a huge improvement.

I am curious. Did you also have radiation treatments? We live in Colorado. My husband had his prostatectomy Oct, 2022, just two months before you, at UCHealth. He still had residual cancer cells, so he went through radiation. After two years of worsening incontenance and several visits and phone calls to his surgeon (who has since left UCHealth) and 16 weeks of PT, he is going to have the ProAct procedure at Mayo in Phoenix. The physician there knows Dr. Flynn and mentioned that he has been doing the procedure. Small world.

The AUS "gold standard" is not for very active people who do certain activities. From my extensive research, my understanding is that it is invasive and not reversable. For example, cycling, horseback riding, martial arts, skiing or trail running (where you might fall), or any exercise that may cause you to hit the button can cause problems. However, those who are active doing activities such as golf, swimming, or walking should see an improved quality of life. And, for those who are not physically active, who enjoy reading, watching TV, sightseeing, cruises, etc., they should also have an improved quality of life. My husband decided that he would rather try ProAct, even if it only improves his incontinence by 50%, than have the AUS improve the incontinence 95%, but he cannot do the activities that bring him joy in life. In other words, the AUS would not improve his quality of life by 95%. If you can, I suggest you look at premiere clinics outside of your area, if you are not finding someone who will do the procedure in your area, other than your doctor whom you are not confident in. It may take many phone calls and Google searches, but it may well be worth it to speak to someone who does the procedure and who you can trust.

There are many organizations that offer free hotel or motel rooms for cancer patients. Look it up on the web, American Cancer Society is one of them, but there are many others.

You can make an appointment for a hotel room ahead of time. I know a few people that have taken advantage of this option.

Please come back and tell us about the results. Maybe in a month and a couple months later. A couple of people have reported it works quite well always good to Get firsthand information.

One doctor's assistant told me that the ProAct is reversible. If it does not work to my satisfaction it could be removed. I do like the fact that it is passive. With AUS it has to be manipulated which, for now is fine since I'm 65 in good shape. What happens when I'm 85 and, can't physically or, mentally work it. Who takes over then ??
I was all set to go to Mayo in Phoenix but, they don't do telehealth for places they are not licensed like where I am in NY. There was also the problem with adjustments. The ProAct starts off with 1cc of fluid in the balloons going all the way to 8cc's until incontinence is resolved. I couldn't see flying out to AZ for each cc adjustment.

I had not had radiation. But I now have positive psa/and psma that shows a nodule on my left upper lymph node as of last month. I am now scheduled for my first radiation treatment the week of the May 19. Dr Flynn has been amazing and has me at full inflation of the pro act balloons. I currently go thru approx 5-6 guards per day. I feel much better about my situation for now, let’s see how I am after the radiation but I’m positive!