← Return to Ideopathic Neuropathy - Doesn't all neuropathies have a cause?

Discussion
Comment receiving replies
@cax75

Thank you so much for replying to my post. Sounds like you have been through a lot with a little results from lipoic acid. I did have many blood tests as well and they considered Lyme disease for a while still inconclusive. Your pinpricks all the time must be impossible My problem is that my toes have a mind of their own and cause imbalance when I walk and pain after just a few minutes of standing or walking. I saw a video on YouTube concerning the difficulties of trying to find causes for peripheral neuropathy and therefore the idiopathic diagnosis. She said that there is no such thing as idiopathic. In Latin it means an idiot. She is in Boston and I am in Plymouth and I'm trying to get an appointment to see her. She developed a list of tests that doctors should use to try and rule out certain causes. This was 7 years ago and the list is being used today I believe. The doctor is Dr Oberlander. I will give you more information as I go back and find it and forward as I see her.
Thanks so much for sharing. I can wish you good luck and hope that the pinpricks are gone.

Jump to this post


Replies to "Thank you so much for replying to my post. Sounds like you have been through a..."

@cax75. Actually the alpha lipoic acid works well. It took away the 24/7 pinpricks but I do still get them. They come and go as they please. As far as the Dr. could you have meant Dr Anne Louise Oaklander? She is at Mass General Brigham. Please look her up and read about her. She has a lot of stuff next to her name. I am thinking a couple of years ago I saw her giving a speech on the internet. We have to be our own advocates. I am a determined woman let me tell you. You know and I know it is sometimes difficult to get answers but we need to not let that stop us. I am not going to let that stop me. I wish you good luck in all your endeavors! Comeback and let us know how you are doing.