← Return to Ideopathic Neuropathy - Doesn't all neuropathies have a cause?

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@rnlorena

@cax75 In 2021 I was diagnosed with small nerve fibers neuropathy, Ideopathic and non length dependent. I went to a lab and they took 20 tubes of blood that day and found nothing. They checked a lot of things. Heavy metals was one. They checked me for auto immune diseases. When I researched this I thought to myself if I had an autoimmune disease I would know it. But after reading I discovered you can have an auto immune disease and not know it. I woke up two days after retiring from nursing and I had full onset of pin pricks head to toe and in my eyes. Going off constantly. After a two month wait I got to see a neurologist and The first question I asked was how many of your patients in your entire career wake up with full onset pin pricks. His response was none it’s rare. No one in my family had anything like this. I had two Covid shots in Jan. Of 2021 and I was in the 6 week time frame for having a reaction. It will be years before they come up with answers to that. Did they ever do BLOOD WORK on you? I also had the skin biopsy and it showed the small nerve fiber. I take alpha lipoic acid and it has helped me a lot. I still get them wherever they decide to go off on me. But not like 24-7 constantly anymore. It is sometimes difficult to find answers how well I know. I wish you luck. @rnlorena

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Replies to "@cax75 In 2021 I was diagnosed with small nerve fibers neuropathy, Ideopathic and non length dependent...."

Be sure you’re not consuming any synthetic meds, supplements or beverages. Especially Synthetic B6 in vitamins beverages, coffee etc.

They can hide it in coffee if it’s less than 1%
they don’t list it on the ingredients

This could be why the Alpha Lipoic acid is working for you.
Research MTHFR
MUTATIONS .
You may have methylation issues/ issues detoxing if your Homozygous or Conpound Heterozygous.

I’m no expert but I had similar symptoms and this is where it lead me.

Always see a NATURALPATH vs a traditional md

It’s great that we spend so much time worrying about the cause but the fact of the matter is once you got it, you can’t get rid of it. Underlying causes possibility. Let’s start with autoimmune diseases. I have vitiligo I am hypothyroid. didn’t have any symptoms of AN till right after my third Covid shot probably drank too much during Covid point being I don’t know where it came from. I’m not gonna dwell anymore. Basically any medical advice I’ve gotten has been totally ambiguous except the docs saying that I have autonomic neuropathy so bottom line I don’t know where it came from. I have some idea where it’s going, etc. etc. etc..