← Return to Neuropathy cause by the infusion drug Remicade

Discussion

Neuropathy cause by the infusion drug Remicade

Neuropathy | Last Active: 14 hours ago | Replies (3)

Comment receiving replies
@gus0557

hello watcher7t,
welcome to our small, large family of people with neuropathy. And yes we all have our own personal stories with this condition as we each experience a variety of symptoms diferent from others and each responds differently to different treatments including medications, therapies, etc... I have recently been diagnosed and confirmed with as having large fiber peripheral neuropathy and bothe cervical and lumbar radiculopthy after over ayear from intitial onset and so many doctors and medications. I belive we've all reached the conclusion that there are no concrete causes for the condition and so far no cure. All treatments are aimed at slowing down the progression of the condition and to help cope with it.
I have also used up all my FMLA. My position at work was opened to be filled and am now on short term disability till May 23rd with the knowledge of absolutely knowing nothing of what will happen after that. The most important thing is dealing with the psychological aspect of going through the condition. Hopefully, unlike me, you have a good support group built around you to help you.
Good luck and take care,
gus

Jump to this post


Replies to "hello watcher7t, welcome to our small, large family of people with neuropathy. And yes we all..."

Thatnks Gus for responding. Yes it is amazing how these things attack each of us in different ways. I am in an ulcerative colitis group on FB and try and help the young ones diagnosed that join in and just scared out of their minds because of how life altering UC is. It rips your heart out seeing the stories of kids as you as infants that are diagnosed with UC or Chron's. There's so much toxic crap in our food supply these days and personally I think it has a lot to do with people getting digestive diseases.

I was approved for SSA on my first application thanks to having two different Neurologists had the same diagnosis and Physician statements I sent in. All my Doctors are now with Mayo and have been the best! I hope you have the same outcome too.
Take care too!
Brian