Have you gotten more info since last post? This is my first post and I'm sorry for what you have been through.
I was looking to see if anyone else had mobile cecum and if they had surgery for it. I've read about cecopexy (where are cecum is surgically attached to where it should be). But I never see the name of a surgeon or what the patient experienced. Did your insurance company ever hear anything from Cleveland Clinic? I didn't know insurance companies would ask for second opinions like that or maybe they were trying to help you be seen at the Cleveland Clinic?
I hope things are better and I really wish you would post an update.
I see online that people got this fixed when they have volvulus (twisting) so surgery is life and death emergency. Whatever the cause of your problem, I hope it is better.