Can someone help me about life after AUS 800 implant?

Posted by rodneyverrill @rodneyverrill, May 8, 2024

This is my first question/post so please excuse me as I a new at this. I am 58 and have had an RP in October of 2023. My prostate was 155 grams and since the procedure I have been left essentially incontinent using 7-9 large pads a day. Although this has been difficult, I feel fortunate my psa has fallen to .008, a number my doctor tells me is considered undetected.
I have tried PT with very little results, my surgeon recommended an AUS, so this coming Monday I will have surgery to have this installed. I have read many of the posts within the prostate cancer section, but I am still curious about discomfort after the 5-6 week healing process and "regular activity like swimming, golf, and more strenuous activities like mowing and lifting firewood. I am of course second guessing my decision but would be appreciative of any feedback any of you have.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Bookmarking this thread, because it looks like I'm having this done next year.
Lots of good notes here. Thankyou for sharing your experiences & tips.

REPLY
@lee61

To. fcstar98. I’m 63 and had AUS in 2021 and it will get better. Yes my Dr said ..tug the AUS down occasionally. She had a patient that didn’t tug it down and she had to operate again on him to get it down into scrotum. U will be nervous about squeezing it but it’s no problem after you get use to it. Extra cushions on chairs and get in n out of car slowly. Too much pressure on perineum where cuff is will cause brief pain. It will get better.. just take your time squeezing the pump . Keep us updated.

Jump to this post

Thanks more info on here than the doctor gave,like pulling teeth

REPLY
@peterj116

Bookmarking this thread, because it looks like I'm having this done next year.
Lots of good notes here. Thankyou for sharing your experiences & tips.

Jump to this post

I am 85 yr old male. I had seeds and external beam radiation in 1999. I have a suprapubic catheter because of urethral strictures. I am now incontinent. I am considering an AUS or an ileal conduit. Please share anything that might help me. Thank you. Michael

REPLY

I'm 73, have had stage 3 and now 4 metastatic prostate cancer for 10 years. Lost both urinary sphincters from surgery and a cystoscope resulting in complete incontinence. I'm very active and life became almost miserable. I opted for Boston Scientific's AUS 800 two years ago. It's been an absolute life changer for the positive. If you're at that point in your life, my opinion...go for it. I would do it again in a heart beat.

REPLY

Thank you for your encouragement. I had the aus 800 installed on april 14th 2025 and will have it activiated and lesson on how to use it on May 19th. So sitting around a lot right now. Once activated I am looking forward to playng Golf going swimming riding a bike pickleball hiking etc. I guess I can wait but would like to know if I am in the ballpark by thinking I will be able to do these things and be DRY. whow what a deal that would be. Looking forward to life again . Hope things are good for you if you get a chance let me know any tips etc.
Peter

REPLY
@pmccharles

Thank you for your encouragement. I had the aus 800 installed on april 14th 2025 and will have it activiated and lesson on how to use it on May 19th. So sitting around a lot right now. Once activated I am looking forward to playng Golf going swimming riding a bike pickleball hiking etc. I guess I can wait but would like to know if I am in the ballpark by thinking I will be able to do these things and be DRY. whow what a deal that would be. Looking forward to life again . Hope things are good for you if you get a chance let me know any tips etc.
Peter

Jump to this post

What a difference from before activation… I m dry and can do most activities. This device is a godsend. I deactivate at night… a bit of a learning curve but easy enough to figure out. It’s been about a month now and use iPad a day to catch drips after urination. I golf and hike… home maintenance.. very pleased !

REPLY
@pmccharles

Thank you for your encouragement. I had the aus 800 installed on april 14th 2025 and will have it activiated and lesson on how to use it on May 19th. So sitting around a lot right now. Once activated I am looking forward to playng Golf going swimming riding a bike pickleball hiking etc. I guess I can wait but would like to know if I am in the ballpark by thinking I will be able to do these things and be DRY. whow what a deal that would be. Looking forward to life again . Hope things are good for you if you get a chance let me know any tips etc.
Peter

Jump to this post

For me, biking doesn't work. It tends to trigger my AUS and leaking. So I only suggest you proceed with caution on this and other activities.
Good luck and enjoy your new freedom.

REPLY
@rokski

What a difference from before activation… I m dry and can do most activities. This device is a godsend. I deactivate at night… a bit of a learning curve but easy enough to figure out. It’s been about a month now and use iPad a day to catch drips after urination. I golf and hike… home maintenance.. very pleased !

Jump to this post

Hang on... you deactivate at night?
That's a new one.

I'm having mine in a month or so.
I'll ask the surgeon about that.

REPLY

Have had an AUS 800 for a LONG time and I will share the good/bad as I've learned them. It is THE gold standard for continence after prostatectomy. Unfortunately, the design has a built in problem that will inevitably surface in the future--the cuff around the urethra will deform that delicate tube requiring either a "double cuff" or a replacement. My experience is that I had a very, very good 5-6 years with the first installation and a pretty good 3-5 years with the double cuff. Where I am right now, no point to replacing it again (due to advanced metastasized cancer) but I would not hesitate for a moment if I were in a better situation. Make sure you have a complete and thorough discussion with your urologist of the plusses and minuses involved. However, to my understanding, the AUS 800 is the only alternative to pads. BTW, don't be surprised if your urologist says they want no part of this--I had one that did so.

REPLY
Please sign in or register to post a reply.