← Return to incontinence following prostratectomy

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incontinence following prostratectomy

Prostate Cancer | Last Active: 2 hours ago | Replies (31)

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@peterj116

I'm no fan of any "medical professional" who tells you to "live with it".
"We may have to wait" sounds a little more hopeful and a lot more honest.

I had the prostatectomy last September & have been pretty incontinent since (up to 7 pads per day).
This is despite 6 months of PT before & after surgery.
I just don't have the coordination for it.

I understand that they don't consider an artificial urinary sphincter until a year after surgery - to give it time to get better on it's own.
In my case, they've given up & I'm having the op 9 months after the surgery.

So as everyone says... we're all different.
In your case, "put up with it" probably means they usually wait 12 months before taking the next step, so try to get through until then as best you can.
If you're really struggling with incontinence (physically, financially or emotionally - or all 3) tell them.
Tell anyone who will help.
Now is not the time to be shy & not want to "bother anyone".

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Replies to "I'm no fan of any "medical professional" who tells you to "live with it". "We may..."

thanks peter
can you let me know how the artificial sphincter goes,?
I have heard about that and a sling or something like that/ why did you chose that option?
I really hope this goes away but who knows/. It may be that I am 71 and things are taking longer in general.
I agree with you; I am very frustrated with being told to more or less wait, live my life, etc it is a big deal to be leaking almost all the time, around family and friends/ I do not see ever getting comfortable with this I can try to stay indoors or by myself most of the time, avoid strenuous activities, but I do not want this to go on and on, Three plus months already and it might go on for nine more months> I really hope I can turn some corner in the near future

One of my issues is trying to determine how much to push things, continue to do physical activity, do my daily workouts but also know when to back off and rest / I am just now learning that there is a sort of 'delayed reaction' following strenuous activity., I love swinging a mattock, digging holes, carrying heavy things, I love working and doing things all day long. However- now- when i do some of these things, even just a couple of hours of gardening- I feel great, my mood is excellent (like my old self) but then about 4-5-6- hours later the wheels come off. I also can now tell that my pelvic floor muscles are sometimes hypertonic and spasm ( get tight and cannot relax for hours.,) just like doing physical things, I have to monitor my pelvic floor muscles to push some and also make sure I am backing off some or trying to relax them
I really appreciate the comments and if anyone has any tips or advise I would love it

Look into a new product called ProACT. They put a couple of balloons near your urethra and then bring up the pressure and it Works apparently. Someone in this forum had great success with almost complete Incontinence