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What side effects, if any, did you have with Cyberknife?
Prostate Cancer | Last Active: 3 hours ago | Replies (22)Comment receiving replies
Jeff. Thanks so much.
Not sure if the seminal vesicles. The only thing I saw was a Partin Probablikty chart where it listed 2% which assume means < 2% chance it escaped. I did not have a decipher or PET or bone scan.
Would you recommend some of all of those?
I think they have a standard protocol of > 7 = treatment. I have read some suggest getting a second read on the samples especially the 3+4 = 7. But again with 12 or 12 positive I wonder if I should be conservative.
Can they send the samples to another lab? This was read by the Urology Groups own pathologist.
Replies to "Jeff. Thanks so much. Not sure if the seminal vesicles. The only thing I saw was..."
I would argue that a PSMA PET scan is your most important. It will definitively (or as close as can be ascertained) whether you have metastasized. It is standard protocol after biopsy. Decipher, I don’t know how it works, but it is an estimate not like a PSMA, which tells you whether and where it has metastasized.
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A decipher test would be VERY useful. It tells you the probability of reoccurrence, if the number is really low you don’t need to hurry. You really would benefit from going to that Ancan.org group. You would learn an awful lot. A decipher test would be very important at your cancer level.
If you want a second opinion,they send the slides they used to determine your Gleason score and Other findings. There is a doctor in New York who is a specialist in prostate cancer Pathology. I think he charges $450 and insurance doesn’t pay for it. You do want somebody who is a specialist in prostate cancer if you can get them through your insurance carrier.
Dr. Jonathan Epstein pathologist biopsy review
https://advanceduropathology.com/consultation/
When I had my First biopsy that showed cancer I got the slides from Kaiser and took them over to a pathologist friend to review, for a second opinion. That was a real story. On the way down a two lane Street near my house I got stopped for speeding. Up walks this burly looking cop, it Turned out it was a woman. She asked me why I was in such a hurry and I said, “well I was a little freaked out because I had these slides with me showing I had prostate cancer, I just wanted to get them home.” Of course she wants to check my drivers license, but, she comes back to the car and says watch it, and lets me drive off. Whew….